My husband, 77 has had an excellent response to enzalutamide and prostap for almost four years. He had a cardiac event (the enzalutamide was stopped then) last month and is now four weeks post quadruple bypass. He's making a remarkable recovery but when we met with the oncologist yesterday we were told that both the enzalutamide and prostap would not be resumed because of cardiac concerns (they were not specific about this, and his psa is undetectable) and that he would go on relugolix only now. This is despite his discharge letter from the bypass surgery saying that from a cardiac perspective they were happy for him to restart the enza. We are feeling distressed about this, has anyone here had a similar experience?
Hello PollyB
Thank you for the update. It's medical advice from a professional oncologist so I can't disagree with it. Your husband as you say
He's making a remarkable recovery
and his PSA is undetectable. It's possibly a medication clash - however as long as he's having regular PSA tests his oncology team will be keeping an eye on him.
All I can suggest is you contact the oncologist and ask for an explanation as to why he's had his cancer medication changed.
Best wishes - Brian
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Hi everyone, I'm Emma from the Online Community team. Thank you all for your supportive contributions to this discussion and I hope PollyB that it has been helpful.
I just wanted to share some additional signposts which may be supportive.
Firstly, our Ask an Expert forums offer a place to ask our Cancer Information Nurse Specialists questions about treatment options. Having clear information is really important so if anybody is yet to check that out then do have a look.
Secondly, it can be helpful to know what information online is reliable and accredited, and what could be seen as misinformation or disinformation. Macmillan information is PIF TICK certified which means it has been carefully checked and approved and this page can help you to work out what cancer related information online is reliable.
Of course we would always recommend raising any concerns with your GP and healthcare team as well.
Hopefully that is helpful and do keep the discussion going.
Take care,
Emma (she/her)
Online Community Team
