Hormone injection

Former Member
Former Member
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Had my monthly hormone injection Monday 14th had a very painful few days & rash round injection site along with swollen painful hands 

is this normal

  • Former Member
    Former Member

    Hi,

    Can you give more information? 
    What did you have Decapeptyl/Prostap? 
    Site of injection & has this happened before. 
    Have you had any other injections within 2 weeks of it.

    Regards

    Tyler

  • Hi

    You need to contact your oncologist or special nurse and tell them of your problem.

    Stay safe

    Joe

  • Former Member
    Former Member in reply to Former Member

    Hi Tyler 

    all I can tell you is that I have prostate cancer which has spread the bone 

    the injections I’m getting are degarelix 80mg 3 months ago when I was first diagnosed I had a booster of 2 injections that was done by oncology then I was transferred to my local surgery nurse 1st time she done it instead of taking a minimum of 2 mins. She done it in 20secs. I told oncology what she had done & they sent her a video this last injection wasn’t the full 2 mins. More like 1 min.

    each time including the booster I have about 5/6 days of pain before it settles down that one last week was horrendous pain for 48hrs along with other systoms I described earlier

    seeing consultant this Friday 25th

    see what he says

    cheers

  • Former Member
    Former Member in reply to Former Member

    Hi sorry no other injections

    cheers

  • Former Member
    Former Member in reply to Former Member

    Hi Flashg

    Hubby had his third injection of dagarelix (Firmagon) yesterday.  He like you had two initial injections, and now monthly.  Bone Mets like you too.  The first two were swollen for weeks, a little pain.  Second one less swollen and less pain.  This time, bruising around injection site but no pain.  Bruising we are putting down to the fact that he had his first chemo session 3 weeks ago.    We have a nurse that comes to the house to administer it.  Not really noticed how long it takes to administer, but will ask next month.

    Stay strong

    Ginny

  • I had a reaction on Firmagon last time. It went red and a little bit yellow. It turned out to be an infection. I also noticed that the nurse didn't do the jab very deep (more sideways) hence the swelling wrapped itself round my tummy for a few days.

    I think these injections are quite hard to get right and it is definitely best to be well informed about the injection and how it is done.

  • Former Member
    Former Member in reply to Former Member

    Hi Ginny 

    thank you for your info I hope you & your hubby are keeping good

    i was over this morning at The Beatson Lanarkshire after I had a phone call to revue my med. & take bloods again, they decided to change mdegralix to Prostap 3 monthly instead of monthly & are looking to put me on Alendronic Acid to support my bone structure 

    seeing my consultant this Friday I’ll post update after that

    stay positive stay safe

    stewart G

  • Hi Stewart 

    It would be good to hear the outcome. I'd like to stick with Firmagon for as long possible because of spinal tumours. My Oncologist says that NICE have not found any evidence  that Alendronic Acid supports bone structure in Prostrate Cancer. It sounds like one of those where opinions vary and as patients we need to ask lots of questions. Adcal D3 and a healthy diet are of course a must. 

  • Hi Stewart,

    I have been on Prostap3 since April 2020 and have never had any problems with the injections at all. I receive them in my upper arm which they alternate each time I go. Been on Alendronic Acid once a week and Adcal-D3 tablets twice a day for about 4 months now, no side effects from either of them and they only add to my list of medications. My consultant is also based at the Beatson although I have still to meet her face to face.

    Take care, Tom.

  • Former Member
    Former Member in reply to HarleyD

    Hello Tom as though you have a good package I’m hoping as they change my meds things will get better

    my next jab is the 14th March I’ll keep you posted 

    cheers