Hi,
I was diagnosed mid November 2021 as T3aM1N1. My psa score was 105 with a doubling rate of 6 months. Gleason score was 9 unfortunately. Following MRI scan, bone scan and PSMA CTI scan I have bone metastasis. 2 spots in ribs, 2 in spine and some to pelvis. Tumours have broken out of the prostate capsule.
Have been on Decapeptyl for almost 2 months and previously bicalutamide for 6 weeks. The great news is my psa has dropped to 1.7.
My consultant wants me to start enzalutamide in addition to the Decapeptyl. I am worried because I thought I would be put on this when the Decap stops working.
Also he wants me to start radiotherapy in 2 weeks ( 20 sessions over 4 weeks ). I know this seems pretty standard but can I improve my chances of longer survival if I pay to have a prostatectomy instead ? I know they usually seem to say no but I don't fully understand why ?
Also can the bone Mets can be slowed down or cured with targeted radiotherapy to the bones ?
I'm still learning about this and the treatment options.
Your advice would be greatly appreciated.
Pete
Hi Pete, sorry to hear.
Surgery is not normally carried out with bone Mets, HT and Radiotherapy is standard really. I don't think that bone Mets can be cured with RT but not 100% on that .
Perhaps/hopefully things have changed.
You could also look at cancerresearchuk.org , u might find a clinical trial that could possibly help you.
See what others say.
Best wishes
Steve
Hi Pete, my diagnosis is very similar to yours, tumours in spine and pelvis. I had that exact treatment plan last year after being diagnosed in March 2021, please check my profile for my story. The RT to the spine was done after I had been on HT for a few months and was to try and slow its growth as I was told i could not be cured. I had RT to my chest but that was to relieve pain caused by breast swelling and I had 20 sessions of RT to my prostate. My psa has been undetectable since July 21 and my latest scans 2 weeks ago show no new mets and no increase in sizes so I would say take what they offer you, I was told the aggressive treatment plan was needed and may give me more time. Good luck and take care
Regards
Paul
"Diagnosed March 2021 at 38 years old with stage 4 metastatic prostate cancer, my journey so far is on my profile"
Once the cancer has metastasized, the removal of the prostate would generally be on the basis of "remove the mother ship to slow the disease", or because it is spreading to other organs, such as the bladder or the rectum. In most cases, radiotherapy will do a better job.
It may be worth asking the surgeon why he feels surgery is not the best approach, as few surgeons will recommend radiotherapy if there's a chance surgery would do the job.
Where metastases are concerned, radiotherapy can certainly slow the disease, and can be very effective where pain is an issue. Where there are a small number of metastases, there is potential for destroying them all, but where there's a large number, this is not so, as there will likely be more as yet unseen, and you can only have so much radiotherapy.
- - -
Heinous
If I can't beat this, I'm going for the draw.
Meanwhile, my priority is to live while I have the option.
Hi
As Heinous has said, it’s very rare they will remove the prostate once it has ‘Burst’ out, once you’ve had radiotherapy oncologists are reluctant to give more as it can cause bad side effects, be it in weeks months or years, for instance after an colonoscopy it was detected that I had radiation causing bleeding caused by the radiotherapy, this is not common but the more you have the more your open to different side effects.
where you have the metastasis, is strangely one of the places the cancer goes to first and yes that’s where mine went.
I’m on enzalutamide have been for over a year, it’s a powerful medication, it can make you light headed and fatigued but it does the job.
Stay safe
Joe
Hi,
Thanks for all your advice. Yes consultant say's it's got to be radiotherapy not prostatectomy based on the spread.
Will begin that in two weeks. The enzalutamide arrived today and I will begin that tomorrow. Also another decapeptyl injection next week.
One day at a time.
Thanks again
Pete
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