Hi all,
My clinical pharmacist who is part of my multidisciplinary team (MDT), advised me she is going to prescribe me with Adcal-D3 & Alendronic Acid shortly. I will begin treatment of Alendronic Acid once my dentist is satisfied my dental health is good. It is to do with a rare side effect called ONJ or Osteonecrosis of the jaw bone. Does anyone have any experience of these medications they could possibly share with me? Thanks.
Take care, Tom.
Hi Harley D
I've been on Adcal-D3 for about 3 years and, as Youngman says, it is to protect your bones.
I have also been on Alendronic Acid (Zometa) for over 3 years without any side effects whatsoever. Again, this is a bone protector/strengthener which I have by infusion at my local hospital every 12 weeks.
I have been told that it can cause jaw ache if your teeth are not in great shape and, touch wood, I have not had any problems despite not having great teeth due to the policy of "drill and fill" adopted by dentists in the 50's and 60's!
I too was diagnosed with APC at the age of 65 and am therefore about 2-3 years ahead of you in terms of my treatment. From reading your profile, it would appear that your treatment plan has also been very similar although I had 8 doses of chemotherapy after 3 months.
Being a father of 3 and a grandfather of 4, I also intend to fight this disease to the bitter end!
Very best wishes,
Andy100
Hi Youngman & Andy100, thank you both for taking the time to respond to my request, it is very much appreciated. This is why I think this forum is so good, it only takes 1 or 2 people to respond to make a difference for the person seeking information or help.
Take care, Tom.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007