I was diagnosed with a Pituitary mircoadenoma in November 2020 , I’ve been struggling a great deal emotionally. I don’t feel as though I’m adequately receiving support from family and friends. I feel misunderstood like I’m suffering by myself , I’m not on a treatment plan yet because I still need to see 2 more specialist before then. My vision is worsening to the point I’m getting a bit scared. I have an appointment with the ophthalmologist on the 3rd of September. I’m patiently waiting for this appointment I had to wait 3 months for it , I have hope that the situation will improve. I can’t work currently and the financial stress along with the constant pain I’m in due to frequent headaches plus other symptoms is making for a bad time for me. All of the pain medicine I was prescribed either doesn’t work or only works for a short period of time. I didn’t know I could feel so sad as much as I have been lately , I’ve put on a brave face I’ve tried to be happy. My mental health is getting better but I’m still struggling because of my condition , I feel like my life is stagnant. I came here to find comfort in those who share similar experiences with me. Maybe it’ll make it easier for me to cope
Hi and a very warm welcome to the online community
I'm sorry to read how much you're struggling emotionally and that you don't feel that you're receiving adequate support from your family and friends.
I noticed that you said that you've "put on a brave face" and I'm wondering if this is why your family and friends don't realise how much of a struggle you're finding everything. Do you feel that you could sit down with them and open up about how your diagnosis is making you feel?
In the meantime you could reply to one of the more recent posts in this group to strike up a conversation with other people new to this diagnosis. You could also ring the Macmillan Support Line on 0808 808 0000 and chat to one of their support advisers. The number is free to call and they're available every day from 8am to 8pm.
Sending a virtual ((hug))
"Never regret a day in your life, good days give you happiness, bad days give you experience"
