Am I alone out there? I have a 19mmx16mm tumour get MRI once a year that’s it! No support I have to go it alone
I see that Davina McCall is having her tumour removed. I hope all goes well. Anyone know how I can get mine removed? My 'specialists' are refusing to remove mine until I start going blind. I see that some people have had their's removed even though...
Hi everyone, We’ve launched our annual survey for 2024! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
I've now completed my treatment of surgery and radiotherapy for my pituatary tumour. I feel like a bag of spanners, exhausted, on hormone replacement meds, and uncertain of my future.Ive been referred to Neuro psychology and struggling with cognitive...
I have suffered with a pituitary tumour since 1999. Today at 76 I still attend hospital each year, that was until lock down happened. At one time my prolactin went from over 2000 to 50 in a matter of no time.for the past I would say it has been constant...
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi. I have a pituitary tumour which was found when I was 7, I’m now 47. In July last year I had my ears cleaned using micro suction and I felt fine, then in august I started to get pressure round my ears and over the next few months I started to feel...
My mum had a pituary cyst remove. She's still in hospital. It wasn't cancer but 5 days later she can't walk or get up. She says she has violent headaches and neck pain. Before op her symptoms were not bad. I believe she had a arachnoid cyst. Anyone...
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