Hi! It's the first time I write here and I do it because I would like to know the opinion of other people who are in the same situation. I am 22 years old and I am sorry for the long post, I had no one to talk to, because I don't know anyone in this situation.
1 year ago I learned, through a MRI, that I have a 5 mm pituitary microadenoma, which secretes prolactin. I found this out in an unusual way, at the request of my dermatologist who assumed that the acne burst on my face would have a different cause than the usual ones and so it was. Although,I do not have high prolactin levels (slightly increased)or menstrual cycle changes, I was prescribed Dostinex once a week and Eutyrox 5 days a week because the first drug created hyperthyroidism, but not serious. Since then, I have almost daily headaches, more aggressive or not (I have had them before but not this strong) I also had 2 pain attacks, as I call them, in the sense that I had unbearable pain, high pressure on the ears, head and eyes, severe dizziness and nausea, because of which I was urgent in the hospital. I was also diagnosed with a degenerative disease on the C5-C6 disks of the neck, but from what I understood, it does not cause headaches, but rather shoulders and hands, which I do not have. I talked to my endocrinologist (I changed about 2 throughout the year because they didn't answer my questions and didn't care), and he told me that my chances of having headaches related to the microadenoma were low because It's too small. Also, for 3 years my eyesight has weakened significantly (I can no longer see in the distance), I wear glasses for half a year (I know, I waited a long time until I go to check), but he says that this is not a symptom either. At the pre-MRI check, I was asked if and for how long I had headaches (3-4 years, but I thought everyone has), if I had dizziness, stress (to which I answered yes), but after my diagnosis it is said that the symptoms are not related. Headaches only go with ibuprofen-based medicines.
So I would really appreciate it if you shared your experience and if you would tell me tips or opinions about what I have told here. Thank you in advance!
Hi and a very warm welcome to the online community
I'm sorry to hear that you have been diagnosed with pituitary microadenoma and that since then you have had lots of unexplained symptoms.
I can understand why you'd like to talk to others with this condition but, as it seems to be quite rare, there may not be many others in this group with this.
If you type 'pituitary microadenoma' into the search bar in this group you will find a few posts which mention this condition. You could have a read of those and respond to any of the more recent ones if you think the poster might be able to help you further.
I noticed that one of my fellow community champion GRANNY59 had this condition so I'm tagging her in the hope that she may be able to talk to you about it.
When you have a minute it would be useful if could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
