TSH

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I have TSH secreting tumours on my pituitary gland. I have 2 and they are both smaller than a centimetre each. It has taken months to diagnose as they are so rare. I have just started having somatuline injections. Anyone else with the same diagnosis?

I'm sorry to read that you've been diagnosed with TSH secreting pituitary tumours. Although I don't have any experience with this type of tumour I noticed that your post hadn't had any replies.

If you type 'TSH secreting tumour' into the group search bar you'll find a few posts which mention this but they're very old now so the posters may no longer be in the community. However, you could have a read through them to see if they help with questions you might have.

I have found this information from Macmillan for you on pituitary gland tumours and you could post questions in the ask a nurse section of the online community.

Wishing you all the best

"Never regret a day in your life, good days give you happiness, bad days give you experience"

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TSH