Hello Folks Just Joined

i have different cancer so cant comment, but i didnt want to read and run

Hi John, 

1. Just diagnosed with cancer of appendix after it ruptured in June. I do hope your treatment is going OK, but I don't know about secondary cancer Outlook. How has chemo been for you? Hope you are doing OK   regards shelley 

Hi Shelley

Sorry to hear about your diagnosis. Have you started your treatment yet, if so how are you getting on? I have done 3 chemo treatments out of 6 which will take me up to early Sep. Then they are talking about another 6 after that, with a break inbetween.  I seem to be tolerating the chemo ok with the various support dugs they give you, anti sickness etc. 

Thanks

james 

Hi James, 

I am waiting to hear what the plan is for me, they said could be more surgery could be chemo. It's an awful time, very worrying, as took about 6 weeks for histology, and still waiting for a plan. 

I am glad your chemo is going OK, and you seem positive. Keep going, hope we both respond well

Thank you for replying

Shelley

Hi Shelley 

Very worrying times I know - but potentially lots of treatment options. I know it’s hard but try and stay positive as much as possible .

I was dreading the chemo but it’s not been as bad as I was expecting so hopefully will be the same for you.

take care 

James 

Hi. I can’t advise but my primary was in the peritoneum and spread to the lining of my lungs. I have 6 bouts of chemo which wasn’t too bad. After a break I started on chemo tablets but they gave me high blood pressure so now back on the targeted chemo but not sure for how long. Was told it would prolong my life a little longer. I was under the 8mpression they can’t do any surgery for the peritoneal cancer but you would need to check. The acceptance of how long I have left is hard to take but I make the most of each and every day and I have a great support at Maggies in Southampton. I always feel it’s good to talk. Jules

Hi Jules

Thanks for sharing your journey. Sounds like it’s been tough but good that you are still so positively focused on enjoying each day.

I am not 100% sure on surgery and would imagine it’s patient specific.

Great you have a local support group too.

take care of yourself 

James 

Hi My husband has secondary peritoneal cancer from bowel cancer . It came back from a few years ago. We were told they couldn’t operate and the chemotherapy is to control symptoms try control the cancer extend life . Each case is different unique though. Was just sharing are experience

That’s exactly what I understood from the conversations with Oncologist. With each bout of chemo I’m never sure how long can they give it to me and what happens after but astute enough to realise that they can’t give me a specific answer because of my reaction to the treatment. Thanks goodness I’m not unwell and can enjoy life as long as I don’t do too much. If it wasn’t for research I wouldn’t have extended my life this much so grateful. Thanks for replying, bless you

Morning James

I do hope your treatment is going well.  I have advanced Primary Peritoneal cancer and was told it is not curable but treatable. The consultant initially said  there is a 95% chance of it coming back but after doing so well on treatment and all visible cancer being removed in surgery its now a 90% chance of it coming back so I think that’s a result. 
My daughter always says “you’re in the 10% mum”. 
Lots of new treatments coming out all the time.  All good wishes.  Jane B x