Newly diagnosed

FormerMember
FormerMember
  • 8 replies
  • 12 subscribers
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Hello All,

My dad was diagnosed last week in Ireland, we are still all trying to get our heads around it. Covid is not helping the situation with not being able to go home and support everyone. I know this Type of  cancer Is very rare in men but I’m just wondering if there are any men on here that have gone through this?

its like the bottom has fallen out of our world. We don’t know what to expect and information hadn’t been forthcoming, which isn’t helping.

x

  • Hi  and welcome to the online community

    I'm sorry to read that your dad has recently been diagnosed with peritoneal cancer and that he hasn't been given much information.

    Feeling that the bottom has fallen out of your world is certainly something I can identify with as I can remember only too well how numb I felt when I was told I had malignant melanoma. However, once your dad knows what his treatment plan is then hopefully you'll all feel more confident with anything you have to deal with.

    If you click here the link will take you to Macmillan's information on peritoneal cancer, apologies if you've already seen it. It has a section on what treatment is usually given. 

    Has your dad been allocated a cancer nurse specialist (CNS) yet? They are an invaluable source of information and can also liaise between your dad and his consultant. All the questions your dad wants to ask can be directed to his CNS and, if she doesn't have the answer, she'll find out and get back to your dad.

    You might like to take a look at the Family and friends forum group as it's a safe and supportive place to share your worries with others who have a loved one living with cancer. If you'd like to join just click on the link I've created and then choose 'click to join' on the pages that opens.  

    When you have a minute, it would be really useful if you could pop something about your dad's journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    x

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember in reply to latchbrook

    Hi Swoodley,

     My husband has secondary peritoneal cancer ( primary is stomach). He was diagnosed xmas Eve. He is 51 and I am 46.      His is incurable so he is on palliative chemo right now. So far it has not worked for him all that well and he starts 2nd line chemo on Thursday. It is still spreading and he recently had to have stents fitted to tubes from his kidneys as the cancer was  pressing on them.

     He has abdominal pain but we’re not sure if that is because of the cancer or due to the fact that he now suffers from constipation since the chemo. 
    Sorry this isn’t a more positive post but I wanted to respond anyway as I know not many men seem to have this.

    I hope your dad gets some clearer information and the help he needs. 
    x

  • FormerMember
    FormerMember in reply to latchbrook

    Thank you so much for getting back to me and for all the information. I’ll have a look at the pages you mentioned and update my profile x

  • You're more than welcome

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember in reply to FormerMember

    Bramblejoo, I’m so sorry to hear about your husband and thank you for replying, that couldn’t have been easy x 

    He’s having cytoreductive surgury and HIPEC on Thursday. It seems the stomach is the primary source and they mentioned full or part removal. Sorry I can’t be more specific, I’m receiving third party information from my mum. Please feel free not to answer this bug did your husband have this treatment too? 

    x

  • FormerMember
    FormerMember in reply to FormerMember

    Hi no my husband was never offered that. They said surgery was not an option due to the spread, risk is that they wouldn’t get it all and the surgery itself could spread the cancer cells even more. Are you based in UK or elsewhere? 
    I have read about HIPEC and was going to ask oncologist about that. My husband is quite poorly bright now and not sure he would be well enough for such major surgery but I want to make sure we have tried all options.

    I would love to know how your dad progresses. I know it is frustrating when you hear things third hand. It’s bad enough when I can’t go into hospital with my husband so have to hear from him what doctors day and he sometimes doesn’t take it all in. Nightmare right now and I am just watching him slowly fade at the moment.

    x

  • FormerMember
    FormerMember in reply to FormerMember

    Sorry just re read your message and realise you are in Ireland!

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Swoodley, I'm sorry to read about your dad's diagnosis. As you mention that the primary site may be stomach, I wondered if you might find it helpful to post in the Macmillan stomach cancer group as well? The link is here:

    https://community.macmillan.org.uk/cancer_types/stomach-cancer/