Penile cancer

Sorry to hear the cancer has spread but there is always some treatment just get rid of the infection and move on to the next stage. You are in the right place just focus on getting better. You have been positive so keep that frame of mind and I know you have good support from your wife and I know how important that is.

just ignore the request to contact Paul12k until you are stronger.

I am doing fine almost back to normal.

keep me informed.

Robert

Hi Robert 

Been a while since I have been on here, so thought I would give an update on my journey,  since last posting found out the cancer is in my lungs and stage 4, so not curable but treatable with chemo, have had 3 of 4 cycles, knocking me big style,  but seems to be worth it as masses on lungs appear to be shrinking. Still very tired from treatment but slowly getting there.

Hi William, its good to here from you, really sorry to here your cancer has spread to your lungs but at least there is some positive news that the masses on the lungs are shrinking and you have another cycle to go. The chemo will be worth it but going through the treatment can be brutal, hang in there and just focus on getting through the treatment.

You mentioned your wife is great support and you will need this, you are going through the fight of your life. Look after your self and think positive, set your self some goals to do when you are better.

I am doing really well just still going through tests trying to solve some urinary issues ,I have a bladder that is twice the size of a normal bladder and it will only empty 50%, i have bought a second hand  bladder scanner so at least i can monitor.

Robert

Hi Robert 

Been while since I have been on here, thought I would see how you are getting on ? Have you any luck with your bladder issues? 

And give you an update on my progress, have had 4th and final round of chemo, knocked me for 6 this time, then had a ct scan, which made it all worthwhile as it showed the masses on my lungs had shrunk even more to the point of being very small, now on imotherapy every 3 weeks as outpatient, got another scan for end of month so hopefully results still going my way. Still finding it hard to do to much, as get tired very easily, just means doing jobs in small steps instead of pushing myself to much.

William 

Hi William, It’s good to hear from you and it’s good to hear that the results are going your way. This is a hell of a journey for you but keep fighting. It’s times like this that your loved ones are so important.

For me I decided to let my urinary issues settle down so last month I decided to have an invasive test and got an infection which I have been fighting for 5 weeks but I hope that is now gone.

Still no diagnosis but my bladder is twice the size of a normal bladder which I may just have to live with.

Good to here from you keep me up to date on your progress..

Hi Robert 

Not been on here for a while,  just checking how you are getting on now?

Also to give you update on my journey so far,  finished chemo in January,  which was hard, been on trial imotherapy since every 3 weeks, and glad to say the results have been good reduced growth on lungs from 21mm down to virtually nothing, on trial until next November, then have to see what happens after.

William 

Hi William, that’s great news growth almost gone can’t get much better than that, just keep on that trial.

Chemo can be very challenging but at least the imotherapy has worked this will have given you some real hope.

For me no sign of cancer re occurrence but still struggling with infections. In July my bladder got worse and I am now self catheterising  every night as I can no longer urinate on my own, my bladder muscle is damaged so I just have to live with it, It’s better than having that cancer growth on my glands. I have not had a bad infection for 3 months no medication is working.

Good to hear from you.

Robert