10 months on

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10 months on, I’m doing well penile cancer wise. I still struggle a little with the lack of physical intimacy with my partner, as I’m sure she does. My glansectomy was fairly extensive, and whilst I’ve adjusted to sitting down to pee, the occasional discomfort and explaining to a tailor that I dress neither to the left or right, things are good. My overall sense is one of gratefulness to the RBH and University Hospital London, for no longer having cancer but part of me still grieves the loss.

It’s been a journey, a learning curve and a trial but ultimately I am still here, able to enjoy the little things, the big things if not the intimate things. The intimate things matter, not being able to have penetrative intercourse is tough, in some respect more so than with ED, because with ED there is hope, when you don’t have the essential appendage then there is only a sense of loss, but experimentation is fun! Good luck on your journey. 

  • FormerMember
    FormerMember

    Hi Johnodp welcome to the forum. Im.liking your sense of humour which seems to be fairly well intact given the situation. You are most courageous in sharing your story for others to read and to benefit from. I feel sure others will be reading but scared to ask so thank you for sharing. Sending very best wishes for the future for you. Gail

  • Hi Johnodp,


    I know from my own experience that the term glandsectomy and resurfacing does not quite explain or intimate the extent of the procedure no matter how well your consultant or surgeon explains, sometimes the sharp reality of what has been done is not clear until all the bandages come off and the swelling goes down. 

    I was shocked, my wife even more so when the bandages came off, and it took longer for her to understand and come to terms with the extent of reduction of my penis. The initial swelling made it look a lot worse than it does today (19 days post op) and once the swelling had gone down we could both see the outcome, possibly a 50-60% reduction in the length of my penis where they had to remove the tumour. The resurfacing or skin graft has yet to finish healing and reshaping, but looks ok so far and resembles the shape I would hope for. Not sure if we are alllowed to share images, but would gladly do so in the interest of helping others.

    Don’t get me wrong, I am completely happy with the result as the alternative outcome is something neither of us would wish. 

    Thanks for sharing your experience Johnodp, if you don’t mind me asking, how extensive was your glandsectomy? 

    I ask as I found the information on this forum invaluable in helping to understand others experiences and the more we talk about our own the better it will before others yet to go through this journey.

    Regards

    J