Penile Cancer

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Hi, my husband was diagnosed with penile cancer this week. We’re still waiting for our MRI  to conclude how deep it spread, a CT body scan and the surgery scheduled by the end of next week. Our doctor referred us to a different oncologist since the surgery would involve partial or full glansectomy. 
it all came as a terrible shock as my husband is only in his thirties and it is an extremely rare cancer to have at this age. 
As we are completely new in all this and still a bit stunned by the news, I wanted to ask people who have already dealt with the same experience.
How long and how bad is the recovery in case of full glansectomy? From your experience. 
What are the possible complications  you experienced after the surgery?

How to prevent some of them if possible at all?
Are there any options for a reconstructive glans surgery if the cancer is gone? 

Im trying to find ways to help my husband to go through this hell. And I am struggling myself as we have three little children and its extremely scary time for all of us. I of course pray it hasn’t spread. The ultrasound confirmed there were no visible changes to lymphs.  And it made us hopeful that it is an isolated cancer.

It would also help to know that someone had a similar diagnosis and fully recovered after that without C coming back.

Maybe you could also help to recommend a good surgeon for a second opinion. 

Thank you. 

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm not a member of this group but noticed that your post hadn't had any replies. Responding to you will 'bump' it back to the top of the discussion list again.

    While you're waiting for replies it would be great if you could put something about your husband's  diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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