Penile cancer follow ups?

Hi grayshoebury 

I noticed your post had not had a reply yet, no direct experience since my wife's cancer is rather different but I would certainly expect you would have some follow ups and looking at our main site here the suggestion is that would be the norm.

If you have contract details of the hospital/consultant it might be worth trying to contact them to check or alternatively talk to your GP and the PALS team at the hospital.

<<hugs>>

Steve

Hi Steve, thank you for the reply Sir. Yes I am about to get back in contact with the macmillan nurses at St Georges Hospital as I am concerned that since my surgeries at the end of last year finished and my radiotherapy ended earlier in the year, I have heard nothing from anyone. I did expect at least maybe some more scans by now to check whether it come back etc. 

Best wishes

Graham

You should be getting seen by someone.My husband had a glansectomy 2 months ago and was told he would be seen every 3  months for at least 2 years.We are in Scotland.

• Have you been seen yet? As with most cancers you will need regular followups, it sounds like you may have been missed in between. I know when had my operation I was followed up regularly. I didn't have radiotherapy or chemo at that time.

Thanks for the replies ColleenB and Williamp, I am about to get back in contact with St George's hospital as its been a year now since I had my surgeries and I think from what others are saying is somehow I slipped through the net which is surprising as the type of cancer I have is very rare and thought even for research purposes they would want to keep a eye on things. Challenging arranging things as I am also a full time carer for my mother who has advanced Alzheimer's disease so I dont get any spare time.

You are definitely right to contact the hospital, as I know from my experience, you need regular check ups, within a year of my diagnosis, and operation my penile cancer returned, which is very rare, you also have the risk of secondary cancer spreading elsewhere, as mine did, picked up fairly quickly because of follow ups. Don't know if you have read other post on penile cancer, if you have you will of seen my post about my journey, which is still going on almost 2 years after 1st diagnosed. 

If you ever have any questions, there is always people on here to help and advice on their experiences. 

Have been back in contact with the hospital up London and it seems my local one which I was sent back to for radiotherapy did not discharge me and so I fell through the net. And hospital where I have my surgeries has now arranged a appointment and scans etc in a couple of weeks time at the Hospital where I had my surgeries as they pointed out like others have said on here I should have been seen regularly.

Glad you have got in touch with hospital and will be seen soon and then hopefully continue to be seen every few months. 

Glad to hear you are being seen soon and having scans aswell, as said before we all need regular followups after any procedure, weather surgery or radiotherapy or chemotherapy. I know as I am on imotherapy trial I have regular scans and check ups.