This is my first post, Hi everyone.

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I have just found out I have Ovarian cancer with Peritoneal thickening & omental caking in my pelvis also enlarged retroperitoneal nodes, I have had CT scans and just had a biopsy,

  I am just waiting for the results of the biopsy to find out what treatment I am having Fingers crossed.

I am very nervous about having chemo with the side effects.

I have been reading a lot of your post and they have given me a lot hope that this can be beaten.

  • Hi, I’m sorry you find yourself here. Waiting for results and treatment plan is such an emotional time. I’m stage 3c high grade, diagnosed Jan 24 currently on maintenance treatment. It’s understandable that you’re nervous about chemotherapy, I definitely was . We are all different, for me once I got that first cycle done to be honest it was more manageable than I thought it was going to be. One week out of three was a bit rubbish but for two weeks led my life well, I found the emotional rollercoaster harder than the physical side effects. I remember when I was first diagnosed wondering if I would go on holiday again and I have been on many and live a good life. There is definitely hope. Best wishes. X

  • SEM.24 Thank you for your reply and sorry that's it's took me a few days to come back on here, I am sorry to hear you are going through this as well, I am hoping to find out when my first cycle next week, tbh it's a lot to get my head around at the moment but trying to think positive, I am just sussing out the pain relief at the moment, also trying to deal with the sweats which is not good in this heat.

     I am hoping to be able to live as I did before this in a few months down the line. I know mine is treatable but not curable but hopefully I will be able to manage it.

    I will try not to stress out to much about the chemo now 

    Thank you and please keep me in the loop on how you are doing I am sending all my love to you with my fingers crossed

    Thank you xx

  • Hello there,   I'm so sorry you've had this bad news which so many of us have.  But once treatment is underway and you feel you are taking back control it is easier to deal with.  Try not to think about it too much in advance - I found chemo was not as bad as I had been fearing.   There's lots of advice on this forum about what to take with you on chemo day, depending on how long your session is, whether you are having the cold cap, etc, but come back on if you need any further help or advice.  

    I have had cancer since Jan 2024 and have had two lots of chemo and am now on maintenance drugs which seem to be working (crossed fingers!).  Although I still have fatigue life is good and I feel incredibly optimistic about the future.

    You can beat this and you have a lot of love and support from this forum.

    x

  • Good to hear from you. It definitely is a lot to get your head around. Sorry you’re in pain, I hope your team are able to help with pain relief. Hearing those words treatable not curable sits heavy I know. It’s 2 and a half years into this for me and to be honest it’s become part of my new normal. There are so many treatments for ovarian cancer now and lots of the survival data is out of date. I’m doing really well on maintenance treatment, feeling well and just returned from a holiday. Good luck with chemotherapy the nurses will look after you well, good luck xx

  • Spooks  Just reading this gives me that extra I CAN DO THIS. Thank you Lots of love coming your way from me. 

    Thank you xx