Granulosa Cell Tumour

Hi I had a full hysterectomy in November as a biopsy showed I had uterine cancer, when they removed my ovaries they did histology on the cyst on my left ovary which also came back as having cancer. I was offered a staging operation and chemo. I had a second operation in January to remove lymph nodes and thankfully they came back clear, I was advised to have chemo as they couldn’t be sure stray cancer cells hadn’t been released, I have had my first round 10 days ago & Ned 5 further sessions, 3 weeks apart. Hope this helps. 

Thank you. That is the option for me too. I hope things go well for you. It’s scary and decisions seem to be with us. I am sure I will make the right one.

Thank you, wishing you all the best with your treatment, my first chemo round has been ok not as bad as I imagined it to be hopefully it will be the same for you. 

Take advice from your consultant and clinical nurse specialist - hopefully they can guide you to the right decision. They’re the experts and will advocate for what they genuinely believe to be the right and safest route for you for the best possible long term outcome.

if you have a good GP, you could always ask their opinion too - sometimes they can offer an impartial but also knowledgeable perspective too

I would but they say the decision is mine. They won’t commit to what is the right thing to do. I understand but it doesn’t help me. That’s why I am hoping someone has had this cancer and has a knowledge of outcomes etc.

hi ya my daughter has stage3 clear cell carinoma its in both ovaries and leaked into stomache linning shes been on chemo but came down with pnemonia since xmas and shes on iv antibotics she hasnt got as far as any surgery yet but i know its on the cards we are keep our fingers crossed ,just keep fighting as theres not much on here about ccc x

Thank You. It’s rare I have been told but that doesn’t make decisions easier. I hope the antibiotics work for your daughter x

Zoe’s just been told told another two wks on iv ,so now I know this rare and aggressive cancer but she’s gonna throw at it ,they said there any trials at it and has been told a full hysterectomy being only 26 means no baby’s newly married it’s a shame but we want her to live ,she told me to say ask which benefits you most go for it x