Ovarian cancer stage 3 c

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Hi all,

I was diagnosed with stage 3c ovarian cancer April 2023 I had 5 rounds of chemo  taxol/carboplatin and then the operation full hysterectomy and omentum removed in November then last chemo in feb 2024. I then started niraparib in march. My ca125 started rising in June so I was having scans every 3months however nothing could be seen until the last one in February 2025. So my last appointment with my consultant I was told that I have a lot of tumours all over and that I need to go back on chemotherapy that will be starting on the 27th of march. He told me the location of two of them and then said that there was to many to list. He then said that it is about prolonging life now and then said that I could have 12-24 months left. I am so numb and I don’t know how to process this. 

  • I’m so sorry you have been told this, not surprised you’re feeling numb. Dosent sound like a helpful conversation at all ! I understand honesty but he sounds harsh to say the least. If you responded well to front line treatment there’s is every chance you will respond well again and tumours could shrink, there are new treatments coming all the time, try not to lose hope, once you process everything I hope you feel a bit better. Be kind to yourself. X

  • Thank you for your kind words he wasn’t harsh at all . We pushed him for that information as I kinda knew that this was where it was going i have done a lot of research since this all started and I recognised the signs. However actually hearing it for real was a huge shock.

  • Hi, 

    I’m so sorry you’ve been told this. My heart goes out to you.

    I absolutely echo what SEM said, if you responded well the first time, there’s every chance you’ll respond well the second time. I’m sure you know this, but because your initial diagnosis was stage 3, you already qualify for clinical trials, so I’d certainly ask the question about seeing if there are any running now that you’d be eligible for. 
    Let yourself feel what you’re feeling, but don’t lose hope. Though it was a different cancer, my mother in law was told it was palliative care or a clinical trial. She chose the clinical trial and after one dose of that drug there was no evidence of disease and that was 7 years ago. 

    Don’t lose hope, they’re discovering new treatments all the time. 
    Thinking of you. X

  • Hearing the prognosis must have been so hard, you are brave to ask. Hopefully treatments will keep symptoms and cancer under control for many , many months possibly years to come. Xx

  • Dear Angelk-18

    i am so sorry to hear this and totally understand your anxiety and sadness. I have been through the same procedure and treatment as you and know what resilience is needed to cope with it. I can only offer to you to lean on your family and friends, to keep engaging with the treatment in hope and to do the things in life that give you joy. I wish you well. Xx