Waiting game

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Hi Wave  I am currently waiting on the results of my CT scan and am really struggling with the ups and downs of how I am feeling at this time. I have a raised CA125 of 64 with two complex ovarian cysts with vascularity, one measuring 7cm and the other 10cm. I have lost 2 stone in weight since Christmas because I always feel full. I am very worried as I've been told by consultant I need full hysterectomy with midline cut 

My parents are great supporters but my husband is not fully acknowledging the way I feel as he thinks it will all be fine 

I understand that but I can't help feeling stressed about it all.

Any advice welcome x

  • I’m 72 and found out I’d got OC My ca125 was 18000, I had a pelvic debulking in June breast to pelvic area full hysterectomy.  Surgeon managed to get it all.  Had 2nd Round of  chemo last week, CA125 now down to 10.  My husband the same,  hardly any suppport from him and understand where you are coming from.  He just says you’ll be fine.  Drives me mad.  I’m still stressed about everything.  Hair shaved off and his answer is it will grow again.  I know that but it’s the  dignity of losing my hair.  MEN 

  • Hi Trish 

    I hope you had lots of support from other avenues as that sounds like a huge amount to go through XX I think the men bury their heads but we need them to step up and take care of us. I'm normally very resilient but I do worry as I have a 20 year old daughter (only child) and very little family x