I was diagnosed with grade 3 primary peritonial and stage 3 ovarian cancer in 2021. I had three cycles of carboplatin and paclitaxol chemotherapy followed by full surgery and additional 3 cycles chemo. After histology I was diagnosed with HRD. When chemo finished I started on the drug Niraparib. It's really worked for me and it's been successful and my life saver. I'm about to hit the 3 year mark. At my consultancy appt yesterday I was told my treatment would stop in two months. I'm well and my bloods are all good. Is anyone else finding they are in the same situation. I've been told I can only take Niraparib for three years. However my own research including cancer research clearly confirms that you can continue to take Niraparib if you are well. Is this a funding issue??? Would be interested to hear from any ladies who are on treatment or who have taken Niraparib past the 3 year mark. Also any ladies who have also stopped taking Niraparib.
I'm in South Wales and wonder if there is a difference in England.
