Niraparib treatment for peritonial and ovarian cancer

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Please can you tell me why I've been told my treatment will stop in two months when I am well and my bloods are good. 

Is this a funding issue that Niraparib can be prescribed for 3 years only as opposed to continuing as long as I am well and there is no medical indication that things have changed. 

  • Hi Roselea,

     

    Thank you for contacting Macmillan Cancer Support. My name is Fran, I am one of the Cancer Information Nurse Specialist’s on the  Macmillan Support Line.  

     

    I am really sorry to hear that you have been told your treatment Niraparib is going to stop when you are doing well and your bloods are good.  This must be a worrying and frustrating time for you. 

     

    According to National Institute for Care Excellence, people should continue on Niraparib until disease progression or until they become unwell with toxicity.  However, the company that made the Niraparib included a 3 year stopping rule and this was also included in the PRIMA study of Niraparib. 

     

    It does not appear to be about funding and we would suggest you have a further discussion with your Consultant to ask them their rationale for the decision and what the plan is going forward.  

     

    If there is anything else we can help you with please feel free to get back in touch.  

     

    Best wishes  

    Fran, Cancer Information Nurse Specialist  

     

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.  

     

    Ref/**FH/DT 

     

     

     

    Copy of your original e-mail to Macmillan Cancer Support 

     

    Please can you tell me why I've been told my treatment will stop in two months when I am well and my bloods are good. 

    Is this a funding issue that Niraparib can be prescribed for 3 years only as opposed to continuing as long as I am well and there is no medical indication that things have changed. 

     

     

     

     

    Best wishes,

    Fran H
    Cancer Information Nurse Specialist