Ovarian 1C1 diagnosis

Hi. I've been diagnosed with stage 2b ovarian cancer. It could be 3b they are not really sure yet. Had surgery in December. Had mass and ovaries and epithelial lining removed. Started chemo on 6th Jan. Went well. 2nd round I had an anphylactic shock type reaction to the paclitaxil after 10 minutes. Tried again 2 weeks later, another drug called lipasomal duxocibin. Had reaction after 2 minutes. Trying again this Friday with another drug. So not had any chemo for weeks now. I'm worried sbout what's happening inside while all this is going on. Is my cancer spreading outside my pelvis. I have an aggressive csncer do it could be doing alsorts. Very stressful. 

Hi Unimum. I'm trying another drug tomorrow. I'm just so hoping I don't have another reaction to this one. It's getting harder the more delays I'm experiencing. I've been strong but this is really testing me. I should have had 3rd chemo last week and be headed for my 4th but I've not even got number 2 under my belt. Hope you are feeling OK. Its hard isn't it. Xx

Hello thank you for your reply. So sorry I have taken so long to reply I had trouble logging in etc. Also had a busy weekend before my chemo today. Third one went well so I'm half way through. You must be so frustrated hope you had your chemo on Friday. How are you feeling now? I'm ok struggling as usual with the steroids and nausea. It is hard I am generally positive but also sometimes feel like a good moan but my friends and family won't let me .... they want me to be upbeat and positive all of the time for them. Take care xxx

Hi Unimum.  

Sorry you are having a hard time with steroids and nausea. But glad you are getting on well with your chemo now. I had a chemo last Friday trying my 3rd drug but guess what, I had a reaction to it. its getting even more stressful.now. I'm going again this Friday and having just carboplatin. I really really hope I can tolerate it. Or I don't know what's next.  I'm staying as positive as I can but I do have days where it all gets too much and I get tearful but I just let it out. I have to. I have moany days too.  I think we are entitled to. My friends and family are usually pretty good about it. But when I do get a bit down I get told to be positive. I know they mean well but I'm human and have been given the worst news you can ever be given so it's impossible to stay upbeat all rhe time just for them. I think you should be allowed to let your emotions out then you can pick yourself up and carry on. Don't keep it all inside. It's not good for you. They need to understand that. If you wanna moan to me please feel free. I totally understand and I know what you are going through. 

Please take care  xx

Ahhh thank you for your reply. I am on Carboplatin only and have been good with it. Hope it works for you. I am in the same boat I have amazing friends and family and I am being very spoilt but I also need to let it all go sometimes. How old are you do you have children I am 53 and have 2 daughters at uni. I am waiting for my genetics results to come back which also adds to the stress. Take care and fingers crossed for the Carbo xxx

I was 60 on 15th Feb. Wasn't how I planned to spend my 60th. I have 2 daughters and a son. Eldest 39, then 34 and 33. My husband has 2 daughters and we have 9 grandchildren. I am aware my 2 daughters might end up with this cancer too. I wouldn't wish this on anyone.  Looking forward to the day when I can have the grandchildren for the weekend like I did before this all started. I just can't manage it at the moment. 

I'm.keeping everything crossed I can  tolerate the carboplatin.

Take care xx

It is crazy isn't it. I am a self employed childminder. Not worked since September I so miss the children. Can't wait to get back to work it's been tough financially too. 

I lost my mum 4 years ago to this horrible disease but she was told it wasn't genetic. I have exactly the same type so a big coincidence. I am waiting for my results from the genetic tests I am dreading it. We are a big family of girls who will have to be tested if I have the gene.

I had my 3rd lot of carbo today I am praying for you that you are OK with it on Friday. Take care xx

• I haven't worked since middle of October. I work at a Specialist Veterinary Centre as a night nursing assistant. Been there 14 years. They have been very good and paid me properly so far but that will stop in May and I'll get alot less. We had just paid our mortgage off and I was going down to 2 nights and my husband dropped a day. And then this happened. I've worked all my life except a couple  years off when I had my kids. So it should have been our time now. Hope it will be our time again when my treatments finished, if it ever gets started.  I'm sorry you lost your mum to this disease. I don't want my girls going through it. I'm just glad it's me and not them.  hope you are feeling OK after your chemo.  xx

Thanks I'm feeling OK a bit jittery with the steroids and hungry!!! You will get your time with your husband keep focused on that. I worked as a senior manager for over 20 years and have a good pension I was always going to retire next year at 55... . I am definitely doing that now. Buying a camper van and exploring that's what keeps me going xxx

• Yes go for your retirement.  I don't retire for another 7 years. We had loads of plans. I'll stay focused and positive.  a camper van sounds amazing. We are going to hire a motor home and go away for a month at a time. There's so much of England We haven't seen yet  lots to explore. We love Cornwall. Go every year. I'll be even more positive if Friday goes alright.  got some nice things planned for this year too. Already had to reschedule 2 of them though cos treatment didn't go according to plan.  xx