Yesterday I was Told by my gynecologist oncologist she highly suspects ovarian cancer and I have been scheduled for Radical hysterectomy ,Appendectomy and Omentectony. She wanted to do this Next week but i talked her into letting me go until January.
All this started 2 years ago with heavy bleeding erratic periods and an unexplained anxiety that became crippling. I ended up over my local accident and emergency due to bleeding so much and was told I was perimenopausal and it's normal and to ask for hrt from my gp
I moved a month later to Wales and did indeed ask my gp for hrt and she agreed. I was put on patches and my bleeding settled and life became good
Around a year later I noticed my bleeding was not being controlled by the patches as well anymore. I was having 2 periods in a month .I also was burping alot and full of gas and air and very constipated .Then I started getting internal vibrations and a debilitating fatigue. I saw a neurologists who said my ferritin was low and asked my gp to put me on iron supplements and I should feel better. I didnt
Next my eating was effected if I ate a larger meal I would feel incredibly sick like it wasn't going down my blood pressure would rise and we had two occasions where I passed out and had to have an ambulance called . the last time they thought i had a bowel obstruction I couldn't stop vomiting. Each time I was dismissed and basically told its my mental health mabey as I would leave hysterically crying with frustration.
LUCKILY my last vist TO a&e a female junior doctor listened to all my symptoms and actually ordered a CT SCAN !by this vist I had visited A&E over 8 times and had to call out 2 ambulances in 2 years .
2 hours later the dr came back I was told I had a transvaginal scan for the next day so to come back
The Results from the transvaginal scan were a 7cm left adexal mass and thickening of my endometriam. The radiographer told me to stay in the waiting room and not to leave the hospital until a Dr has seen her report.
Even so the junior dr dismissed me told me when I left its only small its only a cyst but due to guidelines I have to refer you on the 2 week cancer pathway.
Within 10 days I had seen a lovely gynecologist who also did a tumor markers tests (these were normal)and said awe I don't think this is anything to worry about we will remove the cysts and all will be well .
I was scheduled to see him again but something had changed in his attitude. He said the mdt meeting had reviewed my scans )again) and that I needed an Mri .I'm allergic to the contrast and buscopan so I said look I've already had 2 scans already you told me all is okay can we not do this ?i trust his first opinion that I'm fine .
He looked at me and said without the mri I will have to do a full hysterectomy its guidelines I didnt understand why if it's only a cyst but okay he knows best .
A week later I do the Mri without contrast or buscopan I feel this is hopeless I almost leave the department as images without both are really not as clear or detailed but let's get this over with its only a cyst right? there's nothing wrong with me there right it's Prob mental health and all my symptoms are in my mind !
Then I looked down at my huge stomach and think how tired I am of this bleeding . I stay in this machine for 40 mins Just what if they are wrong ?
Within 7 days of my mri I have a appointment through on my nhs app for a different consultant a bigger city hospital this one is a gynecologist oncologist and it's a different name I'm thinking ooh my normal gynecologist must be on holiday. The oncologist probably just covers for him on days off.
Yesterday I met her and she was absolutely wonderful 
she sat me down she asked me how I was feeling?I'd never been asked how I was actually feeling?
.i told her well I've been bleeding since October again I look 9 months pregnant. i also cannot eat much anymore I feel absolutely terrible .she did an exam then said I've seen the results of your mri and I don't like them I want to operate next week and can you do a pre op appointment in 2 days .the good news is it's not affected other parts .wow the room started spinning this is all to fast
There is talk of taking this away and cutting that away possibility of stoma bags i can't really hear what she's saying.
i end up looking out the window at the trees and I can feel my face burning and I just want to escape this room ,she touches me on my knee and that brings me back to my senses and I agree to everything I nod in all the right places.
.I told her look its so close to Christmas so much had been planned and is there any chance I can have my surgerys in January. She hesitated then said okay let's compromise you can have your Christmas but you must have the surgery the 2nd week of January.
Okay deal .I walked out feeling like I was not in my body did all that really just happen.? We still don't know for sure if this is cancer and its incredibly hard to digest that i am having such major surgerys for a suspicion but I am not living right now with all these symptoms I exist and I'm just grateful that it's been found whatever it is and that soon under the oncologists skilled hands I can be rid of this terrible thing and symptoms that have plauged my life for over 2 years .
Thanks for reading
much love
