Very new here, Worried with a lot of questions

Hi I’m very new here too. What a crappy club to have to join eh?

Mine was found incidentally too no symptoms just bloated mentioned at GP CA125 3400 on tests now I have been told stage 4 peritoneal so I am awaiting a consultation and plan as they say it’s not curabe but it is treatable I’m am spiralling

xx 

I am the same had no symptoms thought I had a chest infection in dec last year didn't get better went in January to the walk in thay tested me for blood clot came back positive so sent me to a and e done xray gave me blood thinners next day had ct scan and hadn't got home dr rang said stop blood thinners cone in tomorrow to have lung drainage  2 weeks later had face to face that was secondary cancer had pet scan to find out stage 4b ovarian treatable not curable had 4 rounds of chemo then had debulking surgery everything cancerous removed done another 2 rounds chemo now on mantanance therapy  had ct scan in Sept seeing consultant this week to find out if cancer free

How do you cope with the in limbo anxiety I still haven’t been given my plan I’m so bloody scared 

I didn't really have time to take it all in I kept telling myself it wasent me I was doing it for someone else who couldn't cope it's now I am struggling had operation hoping I am cancer free have now got chronic PE  which is blood clot in lung if you have any questions  I would be happy to try and help x

Hope you get appointment soon and start treatment it's the waiting for it to start is the worse bit xxx

It’s absolutely awful and I am so sorry that you’re going through it too. The CA125 number scared the hell out of me and I still can’t get that out of my head.

i am due in hospital tomorrow to be drained, however im not very bloated, i feel as normal as i always do so i hope they do another CT scan to see the difference to Friday.

when did you find out? 

You sound like an absolute warrior! I am absolutely petrified. I need to find some inner strength from somewhere. 

I am hoping after tomorrows appointment and Wednesdays gynae appointment I will feel a little more relaxed about things, I think it’s the fear of the unknown 

good luck for your results x

I am sure you will feel more in control once you have seen tomorrow and Wednesday take one day at a time take care of you xx

Hi Colliewobles, I just thought I’d share my journey with you.  I was diagnosed in early February this year and until very late December 2023 I hadn’t had any symptoms apart from loss of appetite which I put down to age, I was a healthy, active 65 year old.  

In late December I started having some pain which I thought was my stomach but I ignored it for a couple of weeks until I woke one morning and felt as if I had a prolapsed womb.  Immediately went to GP who performed an internal exam and made an emergency appointment with the gynaecologist.  Had a CT scan, PET scan and biopsy.  By this time I became so bloated I looked 7 months pregnant. Early February diagnosed with stage 4b ovarian cancer which had spread under my arm, in my neck and some on my chest (not lung) my CA125 was 3800 .

I started  chemo late February and I had 5 sessions, stopped in July to prepare for debulking surgery which was carried out in August.  They removed all cancer during the surgery and my CA125 was 60.  
I started chemo again mid September but this time I’m struggling with my blood platelets and electrolytes which do not recover enough each week to have chemo so since mid September I’ve only managed 3 successful sessions which I am very concerned about.  Due for review with oncologist next week so hopefully there is another plan.  
It’s very scary when you read people’s stories on this forum how many of us had no symptoms at all until it was way too late.  I was ignorant of ovarian cancer and had I been asked about it I would have answered I’m ok I have regular smear tests! I don’t think ovarian cancer is spoken about often enough and it’s so very difficult when the symptoms do not affect everybody or you just don’t have them.

I do hope you get answers soon and begin treatment, I felt much calmer when I started chemo you feel more in control of the situation. 
Take care. 

hi all 

had a crap day yesterday with spiralling out of control anxiety but today is a good day

I had reiki and I have decided I am strong enough to beat this crap  

seeing oncologist tomorrow looks like I’ll be having 6 rounds of chemo and then see if it shrinks enough for surgery 

sending love to all of you on this journey together x