Hi everyone,
Everything started last week when I went for an ultrasound for something completely different. They found a cystic adnexal mass of 11cm. Luckily I work in a hospital and i got the CT scan the next day. The mass is completely suspicious, theres some ascites and the worst bit… they found peritoneal deposits (although they are not sure if its THAT) but THAT sent me on a Dr google downward spiral of despair and death. My MDT is next week and my gyne app on the 30th. I just see everything black with no hope and cry myself to sleep, cannot eat, nothing.
Has anyone been through this and OK? Im just so afraid they say no surgery.
thank you
Hi RMM
I know this all seems very scary at the moment but just take a deep breath, in through the nose and out through the mouth. Please feel free to read my profile , like you I found out completely by accident and unexpected that I had ovarian cancer, first bit of advice is please stay away from dr google, the things written are usually outdated and are general they don’t apply to individuals x I know it’s difficult but try to think of the positives: something had been found and it’s being death with , a team is getting together to find out and sort whatever is going on. The unexpected and unknown is an awful place to be and your on the first step of the ladder to finding out what’s going on and what needs to be done. Please give the macmillan help line a call they are amazing at helping you navigate your thoughts and feelings x if you have a close family member or friend you can talk to also helps and then there’s this forum! There will be people on here to talk too and know exactly how you feel and what your going through x
You will find strength you never knew you had ! The unknown and the not knowing!! Gosh how I remember those feelings , believe me it’s the worst part of all but be assured behind the scenes all the information is being gathered, the more they know the more you can be told , plans can be put into place. You must take care of yourself ( easily said) but try to eat and get some rest and remember treatment for THAT has come so far! I had THAT in my ovaries, peritoneal cavity, on my bowel, in my womb !!! Good grief!! But here I am one year later :o) where there is help there is hope x x I should add if you want any info use amazing sites like ovacome or target ovarian cancer, these are reputable sites with amazing information and some inspiring stories x
I feel good, I’m still having treatment known as maintenance, my way of explaining it is: chemotherapy melted it, surgery removed it and now we just gotta keep it out loll I have 3 weekly infusions of Bevacizumab and take daily medication of Olaparib ( I am braca1 discovered after diagnosis). I still have days of doing nothing, just nothing loll my favourite days, but I try to stay positive I never look at how far I have to go but how far I have come ! The journey is a marathon not a sprint so you must just take everything as it comes , one step at a time. Being on the first step is the hardest step but once the ball gets rolling it’s a whirlwind so please make sure you take care of yourself starting today! Have something to eat take a nap whatever it is it is and until your appointment (I know I know grrr the waiting!) you can’t do anything but take care of yourself x just remember if your overwhelmed give MacMillan a call ,chat to family and friends or pop to your gp and then there’s here on the forum :o) just one day at a time x
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