Borderline Mucinous Tumour

Hi Emm,

I'm here with womb cancer but this group can be a bit quiet so I have got some links for you whilst you wait for replies, I'm about to link you to some sites but I wouldn't usually recommend googling a diagnosis, it would drive you up the pole, stick to the ovarian charity website, Macmillan and cancer research U.K., etc. The Macmillan website has a little bit of information about borderline tumours, I've linked it below:

https://www.macmillan.org.uk/information-and-support/ovarian-cancer/understanding-cancer/types-of-ovarian-fallopian-tube-peritoneal-cancer.html 

in addition, I found a response about a borderline tumour on the target ovarian cancer website, they have a helpline which others have said was great for advice and more information.

https://www.targetovariancancer.org.uk/ask-experts/what-recommended-follow-borderline-tumour-stage-1c 

it's good that they are seeking a second opinion for you, once they have that back they will have a multi disciplinary team meeting, discuss your particular circumstances and decide on any follow up that you need, ask about the benefits and risks of each opinion that they offer you to help you make any decisions that you need to. do you have a clinical nurse specialist, they are usually great at giving you information about what's next and your own case. 

Waiting is the pits, try and keep busy and distracted until your next appointment and plan some nice treats.

lots of love and please let us know how you get on

xxx

Thank you for your post the links were very helpful.

i have had my diagnosis and it is a Mucinous borderline Ovarian tumour stage 1a.

they have said no further treatment but 6 monthly blood tests and scans.

apparently they are unable to check all the cells around the ovary as there are millions, but the ones they checked haven’t broken off. And nothing inside has broken off. They cannot guarantee a secondary tumour.

i feel so confused at the moment because it’s not a definitive answer. I almost wish that they would want to remove my other ovary and womb etc.

i am worried I will worry for the next 6 months if everything will be okay,.

a lot to take in and process.

has anyone else had the same diagnosis then things have developed into more?

i hope I have made sense I am writing 5us having just returned from my specialist.

em 

Hi em,

i had early stage womb cancer and I'm having six monthly check ups, it's quite a lot to get your head around being left on your own for the six months but I was advised to contact my team as soon as I experienced any symptoms between appointments, e.g. I had a few small bleeds which were checked between my appointments and were and not an issue. 

If you would like a hysterectomy you are entitled to at least ask your consultant about one, and ask for a second opinion too. I had a full hysterectomy with removal of my cervix, ovaries and tubes, it's put me into surgical menopause, which might be one of the reasons why your team want to watch and wait. 

We imagine cancer rampaging around our bodies at pace but the reality is it takes a while to grow, did they tell you what grade (grade tells you how abnormal the cancer cells are and how quickly they grow) your cancer is? 

Lots of love

xxx

Hi Aria

i am sorry to hear about your womb cancer.

he said I was stage 1a, and my cells are abnormal. I have two teenagers so am not looking to have any more children

i feel really confused, I do trust Southampton of course I do. I just don’t want to worry for 6 months.

i have asked my surgeon if it is possible and he said he would speak to the MDT team at their next meeting.

thank you for your message

xxxxx

Hi Em,

i completely get where you are coming from, the worry doesn't go away but you do learn to live with it and give it less head space. I found counselling really helpful after my surgery, my CNS was able to arrange it for me.

Its important to be happy with your treatment plan, keep asking questions until you are satisfied. If you do a search on the ovarian cancer group home page you might find some old threads from people in similar circumstances, then you can ask them questions directly by responding to their posts, they will hopefully get an email notification.

Lots of love

xxx