Looking for excellent ovarian cancer surgeon

Hi Dana,

the royal marsden generally always gets a good reputation on the site through the different gynaecology groups. I had TAH & BSO for womb cancer at my local non specialist hospital so can't be much use for referrals but I can maybe point you to some other useful resources whilst you wait for other replies, the eve appeal has a gynaecologist nurse specialist and the others have information lines too that can hopefully help.

Target ovarian cancer - https://www.targetovariancancer.org.uk/information-and-support/what-ovarian-cancer 
Ovarian cancer action - http://ovarian.org.uk 
Ovacome - https://www.ovacome.org.uk

The eve appeal - https://eveappeal.org.uk/supporting-you/ask-eve/ 

best of luck for your search, I hope that you can find a good local specialist for your friend. 

Lots of love

xxx

Hi again,

I've done a bit of digging to find old posts asking for referrals here is a link to a post from a month ago asking for a consultant referral, hopefully this helps too:

https://community.macmillan.org.uk/cancer_types/ovarian-cancer/f/ovarian-cancer-forum/148551/best-ovarian-cancer-specialist--advice-please?pi5520=1#1346012 

This one is mainly talking about the midlands:

https://community.macmillan.org.uk/cancer_types/ovarian-cancer/f/ovarian-cancer-forum/146576/recommended-surgeons-centres 

This one mentions centres which offer plasma jet surgery, I think it's only available at a few places across the uk:

https://community.macmillan.org.uk/cancer_types/ovarian-cancer/f/ovarian-cancer-forum/150327/plasmajet-for-ovarian-cancer-operation?Page=1#1211272 

And another older one

https://community.macmillan.org.uk/cancer_types/ovarian-cancer/f/ovarian-cancer-forum/106900/consultant-recommendations-desperately-needed?pi5520=2#866833 

Xx

Ahmad Saynasay was my surgeon at St Thomas hosp.  I  can't recomend him highly enough. Really friendly and down to earth.  Removed my 20cm tumour intact,  so no further treatment as yet.  He specialises in ultra radical surgery and OC. I've healed very well with no complications.

Mr. Burbos surgeon Norfolk and Norwich University is also highly recommended.

We have done some research on the plasma-jet. In fact, a lot of hospitals do use it in ovarian cancer: Royal Surrey County Hospital in Guildford, Royal Marsden London, St James's University Hospital Leeds, and Queen Elizabeth Gateshead just to name a few. I presume there would be more 

Hi,

My surgeon was Dr Amudha Thangavelu at St James Hospital Leeds. She is wonderful and my recovery at St James brilliant. I had Stage 2a Fallopian cancer. Wishing your friend a full and speedy recovery. 

I am sorry to hijack this post. Just to sum up what has been posted (in alphabetical order).

1. Recommended surgeons ultra-radical surgery:

Mr. Balega, surgeon Pan-Birmingham Gynaecological Cancer Centre - Birmingham

Mr. Barton, surgeon Royal Marsden Hospital - London

Mr. Burbos, surgeon Norfolk and Norwich University Hospital - Norwich

Mr. Butler, surgeon Royal Marsden Hospital - London

Mr. De Jong, surgeon St. James's University Hospital - Leeds

Mr. Edmondson, surgeon St. Mary's Hospital - Manchester

Mrs. Fotopoulou, surgeon Hammersmith - London

Mr. Helm, surgeon Royal Cornwall Hospital - Truro

Mr. Johnson, surgeon Royal United Hospitals - Bath

Mr. Naik, surgeon Queen Elizabeth Hospital - Gateshead

Mr. Sayasneh, surgeon Guy's and St. Thomas Hospital - London

Mrs. Thangavelu, surgeon St. James's University Hospital - Leeds 

2. Plasma-jet available:

Royal Marsden Hospital - London

Royal United Hospitals - Bath

Royal Surrey County Hospital - Guildford

Queen Elizabeth Hospital - Gateshead

St. James's University Hospital - Leeds

I think it would be useful if there are any suggestions to copy the list and add your own suggestions to it.

Peace!

Kelly

Hi Twink333

I see you had a 20cm tumour removed successfully. Do you mind me asking if it was cancerous or benign and what was your CA125 score? I'm on the radar but not been formally diagnosed as yet and trying to get some comparisons to others in the same position.

Be good to hear from you.

Thanks

Kay

Hi Kay, my ca125 was 1010 before surgery. It was diagnosed as stage 1A endometriod cancer, so I had no chemo after surgery and a year on my ca125 is 14. Happy to answer any questions you have and fully understand the sheer panic you feel at the start of this journey. It gets better once you know what you are dealing with. I googled to hell and back,  not to be recommended,  but I guess we all do it. Good luck and keep in touch.x

Hi

Thank you for responding. It is just so puzzling as I feel fine (not ill at all) yet I know I have this CA125 of 12000 (now 8600) looming over me. Anyway, see consultant tomorrow for results of CT scan.

Part of me is confident nothing will be found (because I feel so well), then I feel it must be hopeless with such a ridiculously high score.

Mixed emotions but the waiting is the worst - be glad to know either way so I can just get on with the next stage - whatever that may be.

Kay xx

I had radical surgery in may with Dr Fotopoulou for stage 4 ovarian cancer which I couldn't get from my local health board. After 2 more chemotherapy sessions am now on avastin. Unfortunately had to go private and it was expensive .impressed with Dr Fotopoulou's skill and post op interest. Only time will tell if this has been effective in the long run but we thought it was worth a go.

do wish your friend all the best with hard decision making