It’s returned so quickly

Dear Margo,

So sorry you find yourself here …..this disease is so cruel the way it messes with us - giving us hope that going through surgery and chemo will give us our lives back, then returning to fight us on another level.

I too had a recurrence after just 3 months, and am told the OC is now treatable but not curable. It seems that sometimes the cancer can be resistant to platinum, so although the Taxol does it’s job of keeping things under control during chemo, the Carboplatin sadly isn’t able to kill it off completely.

I hope your oncologist is able to offer you some alternative treatments when you see her/him on Tuesday - I’m now back on chemo (Taxol only this time) and due to start Avastin as an ongoing maintenance drug shortly. No way of knowing yet what the results will be, but trying to take things one step at a time.

Really struggling with knowing that now I have to fight to keep this thing contained rather than to get rid of it - but fighting is the only option there is on this journey.

Sending you lots of positive vibes for Tuesday, and would love to hear how you get on if you feel like posting again,

love Bxx

Hi Bxx

Thankyou for your kind words and for replying so quickly 

just in a dark place at the moment and need to get to the acceptance stage and move forward 

I hope too that Tuesday brings me some hope 

will keep in touch 

Thank you 

Margo 

Hi Margo , there are no words. Sending you healing strength , I'm sorry you've found yourself in this place , hoping your oncologist has some good answers and clarity for you.

I feel your pain , mine is also treatable not curable, I start taxol again soon , just waiting for platelets to rise. Finding the strength to do it all again is very hard. I’m usually very positive x

Seen the oncologist today and although you always hope there is something that can be done , for me that’s not going to happen

the cancer has spread to my peritoneum and further operations not an option 

I did not respond to carboplatin, so will be offered taxol to try and give me some time 

I wish you well with your continued journey , agree so hard to come to terms with and positive 

Hi, and so sorry to hear your oncologist wasn’t able to offer some better solutions for you.

I know it’s hard, but great if you can still find things to do that make you happy, and carry on enjoying your life as much as you are able to - I’ve found I live much more in the moment and look forward to things that are coming up sooner rather than long-term since my cancer returned and platinum resistance reduced my future treatment options.

I recently started on Taxol only chemo and have found at least that it relieved some symptoms, making me feel more like doing things on my good days - so hoping you will find the same.

Next cycle I will also start Avastin - who knows what changes / challenges that will bring, but I’m trying to stay positive.

Thinking of you and wishing you all the best,

love Bxx

Think I have pressed flag to moderator in error on your recent reply

thank you for your kind words and encouragement seems we are on a similar journey 

Keep in touch 

Margo 

Will do

Still determined to show this thing who’s boss for as long as I can, even though I’ve had to resign myself to sharing a body with it for (what I hope will be) the long-term.

It’s hard to see the positives when you’ve gone through all that we have already, and come to where we are, but we have to keep looking - and maybe appreciating each day we’re able to enjoy as we live it, rather than taking it for granted, is one of them.

Love

Barbara xx