I was diagnosed with Ovarian Cancer back in Nov 2022. I was told just 4 weeks ago last lot of chemo not worked. Spread to lymph nodes and only last week I had a pleural infusion.
How does one react to being given a timeline? How should I behave? Unfair but not unlucky is what I've told my family. I'm trying so hard to behave, be good. Not strong nor brave. Such a load of tosh as far as I'm concerned. I will not let cancer define me as a person I am ME always have been!
I had breast cancer back on January 2010. I was feeling so well. Living a fabulous life with no regrets and I wouldn't change anything but boy getting my head around this wretched news is just madness.
Hi Lil60
my name is Chelle, and I am an online community champs. My cancer is different to yours, mine is an endometrial sarcoma, and I have been incurable but treatable for the past 12 years.
Can I suggest you join the Living with incurable cancer forum - patients only where you can chat to other people who are in a similar situation to yourself. You can also call the MacMillan support line on 0808 808 00 00. They are available 7 days a week from 8am until 8pm.
Has anyone discussed hospice care with you. I know that when I heard the word hospice I panicked, but a hospice these days is not just a place to go to die, which is what I associated it with. At your local hospice they can arrange counselling and emotional support, manage pain, and help you to live the best way possible with whatever time you have left. I had physio at my local hospice, and they offered me so much more when I was there. You will need a referral from your GP, so talk to him about it.
Wishing you all the best, we are here if you need to chat. In the incurable group you will find some serious topics, but also a daily chit chat thread, which gives you space to talk about things away from cancer. I will look out for you there to welcome you, if you choose to join.
Hi there Lil 60
When you say you had plural infusion only last week.....did you mean they discovered plural effusion ?? Or you had a plural effusion draining ?
I must have had mine months and was admitted into hospital last week to have it drained it was just like laying on LEGGO with the dam drain in for three ruddy nights ....got 2.5 litres of red ascetes (positive) as thats what it is ..and ...looks just like the berry j20 juice .
I think you have to do all you can obviously who wouldn't but I agree all this be strong and huggy buggy and people saying I am with you all the way is all balderadash .
But.....by doing everything you can I mean being proactive in your own situation and researching and being with realistically informative people ...and as soon as a question comes into your head .question andcreserch ...not just sitting in the rocking chair ....with people going there there now ....( being secretly glad its not them without actually saying )....
Thats the best way to direct your fighting energy ...because it is what it is .
Many people in fact I think too many think
Oh ill fight this and too many people tell too many other people oh you'll be fine .
Its all hullabaloo!
Knowledge is your weapon!
Towards the adversary!!!
Too many people easily say
Oh you'll be fine.....
Flippant flakey empty support
Knowledge and never stop asking questions
So that you know youre doing more .
Only that will help your head get more round it
Not deny it .
Leave no question under any stone !
X
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