Pleural infusion and time line

Hi Lil60 

my name is Chelle, and I am an online community champs. My cancer is different to yours, mine is an endometrial sarcoma, and I have been incurable but treatable for the past 12 years. 

Can I suggest you join the Living with incurable cancer forum - patients only where you can chat to other people who are in a similar situation to yourself. You can also call the MacMillan support line on 0808 808 00 00. They are available 7 days a week from 8am until 8pm. 

Has anyone discussed hospice care with you. I know that when I heard the word hospice I panicked, but a hospice these days is not just a place to go to die, which is what I associated it with. At your local hospice they can arrange counselling and emotional support, manage pain, and help you to live the best way possible with whatever time you have left. I had physio at my local hospice, and they offered me so much more when I was there. You will need a referral from your GP, so talk to him about it. 

Wishing you all the best, we are here if you need to chat. In the incurable group you will find some serious topics, but also a daily chit chat thread, which gives you space to talk about things away from cancer. I will look out for you there to welcome you, if you choose to join. 

Hi there Lil 60 

        When you say you had plural infusion only last week.....did you mean they discovered plural effusion ?? Or you had a plural effusion draining ?

        I must have had mine months and was admitted into hospital last week to have it drained it was just like laying on LEGGO  with the dam drain in for three ruddy nights ....got 2.5 litres of red ascetes (positive) as thats what it is ..and  ...looks  just like the berry j20 juice .

        I think you have to do all you can obviously who wouldn't but I agree all this be strong and huggy buggy and people saying I am with you all the way   is all balderadash .

           But.....by doing everything you can I mean being proactive in your own situation and researching and being with realistically informative people ...and as soon as a question comes into your head  .question andcreserch  ...not just sitting in the rocking chair ....with people going there there now ....( being  secretly glad its not them without actually saying )....

          Thats the best way to direct your fighting energy ...because it is what it is .

         Many people in fact I think too many think 

   Oh ill fight this and too many people tell too many other people oh you'll be fine .

         Its all hullabaloo!

     Knowledge is your weapon!

      Towards the adversary!!!

        Too many people easily say 

       Oh you'll be fine.....

   Flippant flakey empty support 

        Knowledge and never stop asking questions 

       So that you know youre doing more .

        Only that will help your head get more round it 

           Not deny it .

           Leave no question under any stone !

                 X

Hello, Thank you for your words.  I had fluid in my lung so had a pleural infusion. I was getting increasingly breathless and had no energy, struggling with day to day. I had no idea what was going on.  I have just come out of hospital again with chestcosin, shortness of breath and low energy levels. This time I was told it could have been a chest infection or reaction to the chemo that I'm having to ease my symptoms. Waiting to see oncologist to discuss plan

I think what you had was a plural  effusion and this is where fluid from the ascetes is absorbed into the lung and chest outer layer via the dialphram.

   The hospital drain this.

   I had this and had 2.7litres drained.

     They do a  biopsie test on any fluid either before this raises symtoms if there is a small amount and that is how you are diagnosed with 4a if malignancy is found within that fluid.

   The chemo helps to stop this reoccurring. 

      I have had no effects from chemo except feeling Fab ...

My motto though is so far so good.

      Glad you are better from your plural effusion.

     Effusion is what occurred and the drainage of that effusion is ,parenthesis. Could be spelt wrongly there as just awoken and cant be bothered to check .

Chemo has been great for me ...onto last one on Wednesday and kept my hair as tolerated the cap each time.

    Good luck onwards and upwards .