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Following on from my earlier post I'm still awaiting a Haematology appointment and results of Jak2 and erythropoetin blood test, over a week now! Two questions Is it normal to be on an ordinary referral to Haematology for Polycythaemia Vera or should...
I have been diagnosed with this rare uterine sarcoma. After 2 months of tests etc I will see a doctor tomorrow..first time I have seen or spoken to one since GP referred me 2 months ago! I am frightened, and there seems to be no info re treatment, prognosis...
Hi all Is there anyone else that's been diagnosed with an apocrine cancer? Often triple negative, especially in older women. Best wishes
Hi, I've just joined the community and would like to introduce myself. I was diagnosed with myelofibrosis in 2021. I had donated blood since I was 18 but in my 50's I started getting rejected because my haemoglobin was low. A blood test showed that...
My Husband has Mylofibrosis. He has had the cancer for a number of years. He is now at the stage where his haemoglobin is very low and has to have blood transfusions every 2 weeks. For the last 2-3 months he has trouble eating normally and has lost alot...
Hi All, My mother was diagnosed with Plasmacytoma 3 years ago, which in turn has brought on Poems syndrome. She takes Lenalidomide and is on a 3 week on / 1 week off cycle. During her 'rest' week she experiences awful side effects - nausea, peripheral...
Hi everyone I think I have PV. A high red cell count was noted when I had a thyroid procedure about 4 years ago and suggested "keep an eye on it". It has recurred ever since when ever I've had a full blood count. I finally insisted last year that I...
I was diagnosed with Essential thrombocythaemia via genetic testing in August last year and since then have been trying to get a handle on my symptoms from both ET and the ME I've been diagnosed with since covid. I'm absolutely exhausted all the time...
Hi everyone, Throughout 2023 I noticed some changes to my health and I was diagnosed with Polycythaemia vera (PV) last November after having a TIA the previous month. On Hydroxycarbamide daily and other tablets for high blood pressure. Having a few issues...
Hi all I’ve just been diagnosed by GP with polycythemia and sent urgent referral to haematology at royal Liverpool hospital. It’s been a whirlwind week since being told and was just wondering if anyone can chat about their first appointment and to give...
