Hi All,
My mother was diagnosed with Plasmacytoma 3 years ago, which in turn has brought on Poems syndrome. She takes Lenalidomide and is on a 3 week on / 1 week off cycle. During her 'rest' week she experiences awful side effects - nausea, peripheral neuropathy, headaches and general aching. Painkillers don't seem to help and the symptoms only subside once she restarts the medication again.
We have spoken to the doctors, but they don't seem to be able to offer any solutions. This has been going on pretty much for the whole 3 years.
Does anyone else experience these withdrawal symptoms and have you found anything that helps?
Many thanks!
Hi again Betty2006 and well done navigating across to this group.
Lets look for folks with first hand experience to pick up on your post.
We also have our Ask an Expert section but please do allow 3 working days for a reply.
I had a quick search through the site using the search tool 
near the top that there is a strong connection between Plasmacytoma and Myeloma….. and there are a few mention of both Plasmacytoma and indeed Lenalidomide in our dedicated…….
……. support group.
