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Hi All. I've just joined this group having been diagnosed with ET & PV in Jan 2022 (aged 49). As a result I have had 20 venesections in the last 7 months. This has resulted in me now suffering with fatigue and having to take time off work. I last spoke...
has anyone had mf for a while and does treatment help with symptoms.
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Hi everyone, I have ET and have never mentioned to my specialist nurse about how it affects me day to day. I think I've made a huge mistake as I now find myself on Universal credit and I'm being assessed for ESA. If I contact my nurse and start to tell...
I have Metaplastic Spindle cell breast cancer, apparently this is rare and aggressive, has anyone else had this type ?
Hi i was recently diagnosed with Myelofibrosis so am at the early stage of anxiety of what the future holds for me
I suffer from Essential Thrombocythemia for which I take Hydroxycarbamide. I generally feel O.K. except that I have a skin itch which detracts from my quality of life. Although it does occur during the day, it is at its worst at night (when I've no other...
Has anyone managed to claim disability benefit, finding work getting harder, dizziness fatigue bone pain, I am 64 year old female and days am shattered any help or advice would be great
still not sure if et is progressing to mf, bloods ok apart from slightly low hb,but its been up and down for 3 years ,so going for a repeat bmb,and take it from there.
Hi all, I’m new here just seeking a bit of support and advice. I’ll give you a brief summary my dad was diagnosed with CMML (leukaemia) in late 2018 with the AXL gene. He had a successful bone marrow transplant in 2019 along with 7 months of chemotherapy...
