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I was diagnosed with MDS out of the blue 3 months ago after a blood test, two days later I was admitted to hospital for emergency blood transfusion, I am 72 yrs old, fit and enjoyed a good social life and enjoyed my travelling. Weekly injections have...
Hi there I’m hoping someone can offer a bit of advice my 25 year old has just got a jak2 positive result and been diagnosed with ET doctors are saying it’s very rare in his age group so much stuff online my main question is what are the long term complications...
Hello I’ve just been diagnosed with a sarcoma in one of the gluteus muscles . It’s about the size of a small fist and am about to start 5 weeks of radiotherapy. I’ve been told this is a rare form of cancer and was wondering if anyone could give me some...
Hi glyndale Only saw your post in Ask a Nurse now , apologies. I am in a similar situation. I have had ET for 13 years (believe it!) and recently had a BM biopsy which has placed me with low intermediate MF (as of October 2022). The story of my medical...
He'll I've had et about 3 years ,no real symptoms and was commenced on aspirin. my platelets are now normal and have been for some time,but my hb is slightly low 112,and my spleen is slightly enlarged at13.7. I now suffer from fatigue so my consultant...
Any recommendations for cruise insurance for someone with prolymphocytic leukaemia, keeping well, not started treatment before trip.
I was diagnosed with myelofibrosis in late 2021 and since been transfusion dependent untill being prescribed Jakavi (ruxolitinib) and other drugs to combat side effects (Aciclovir). From my diagnosis I was informed that the only option due to the stage...
just been diagnosed with mf,not sure how I feel ,google states a poor prognosis but other sites are more positive, just confused about prognosis.
Following on from my first ever post & the lovely reply I got... I am here xx Morning all, It's 0350, I got up with hubby as he's off to work in a bit. I'm having a moment. I've sat here before wanting type, ask questions & generally say these ars...
Hi friends, well yesterday I had a trip to the MacMillan unit (yes, it's really called that) at the Ulster hospital on the outskirts of Belfast. I very rarely see the haematologist to whom I'm assigned. Yesterday I saw Doctor McClintock who last spoke...
