Hi , I’m new to this . my husband has Diffuse B Cell NHL high grade . anyone else had the polar R chop ? we have been told this has only been out 18 months ? he is four cycles down , experiencing pain in groin and tummy sometimes . wondering if chemo...
Hi peeps, 1st cycle in with NHL (Steroids and R-CEOP) treatment rather than R-CHOP (due to preexisting CHD) been weird but what do you do..!! Biggest thing for me has been the loss of weight (I can think of better way of losing nearly 5 stone and walking...
Basically i have had my first session of chemo which they left out the part of the treatment that will put stress on my heart, that is possibly going to be introduced for my second session. My consultant has said that i can choose to carry on with the...
I was diagnosed last week with a rare lymphoma called WR, it’s low grade. Anxiously waiting to start chemo and am completely terrified. How fast life can change, can’t get my head around any of it and am living in a dream world. Any support/advice appreciated...
My daughter had this yesterday for PMBCL. I’m getting anxious now as worrying about everything and the future. My brain goes to some very dark places. Any tips anyone? I am keeping busy and am not her main carer, but live an hour away. Life is so scary...
Hello, I was diagnosed with Non-Hodgkin's Lymphoma about 18 months ago. I initially decided to carry on working part-time but I recently decided to go off sick as I was struggling to cope as I'm also a carer for my mother who has been in hospital. She...
Hi Im joining so that I can help a neighbour who has been diagnosed with NHL. He is in his eighties, not computer literate and he and his wife run a little small holding. He is down for R-CVP chemotherapy. No doubt I’ll have questions in the future...
I was diagnosed with diffused B cell Non-Hogkins lymphoma back in April . I’m now coming up to my last session of chemotherapy on the 29th August. Unfortunately chemo has badly affected my bowel and 4 Days after my 3rd session I was rushed into hospital...
Hi everyone, I have joined this group for help and advice for my mother who was recently diagnosed with stage 4 non Hodgkin b cell, Sorry if not got that quite right. She has started chemo about 8 days ago and seems to be responding well to it. Only real...
I’ve recently been diagnosed with Stage 4 extra nodal marginal low grade non Hodgkin’s lymphoma following a misdiagnosis of metastatic breast cancer (I had breast cancer in 2017 which was successfully treated with surgery, radiotherapy and Tamoxifen)...
