Hello, I have recently been diagnosed with Waldenstrom's and noticed that there arent many on this forum with it, so wanted to contribute my story and support. It was a bit of a shock to be diagnosed under 50, and it came about through lack of energy...
Happy New Year everyone! I hope everyone had the best Christmas and NY that they could possibly have! I've started mine with yet another Infection, bloods are all low. I have been on preventive antibiotics since the end if September and this is my...
Hi everyone I hope your well & fighting on :) My name is Gray I'm 21 years after aggressive lymphoma treatment. In 2004 (age 23) I had: Diffuse Large B-Cell s tage 3 high grade Non Hodgkin's lymphoma 8 cycles CHOP 3 cycles ESHAP salvage High-dose...
Morning all. Hope this finds you in good form. I have been in remission for 2 years now, and I am only now experiencing some feelings of fear regarding what happened. I wont go into detail but 2023 was an extremely hard year. I have fatigue issues...
Hello everyone, I don't want to sound negative but I'm now 4 Years after treatment and recently after a CT scan discovered I have a small brain injury from being in a induced coma back in 2021, it's becoming a worry because I have done things in the last...
I am a new member to the group, I was diagnosed with Splenic Marginal Zone Lymphoma in January this year.
Hi, I am just 12 days after my first R-CHOP session. The pain I had in right hip went day one, so I'm hopeful it's working!,, I had radiotherapy in March on low grade NHL in bone in sacrum, which then transformed to high grade in a site nearby. In...
Hello all you lovely people I'm 47 and a Nurse by background, I am married and have a 27 Yr old and 10 Yr old. I have had my diagnosis 8 days and it's been a shock! Apart from.a lump in my boob I have had relatively no symptoms .apparently lymphoma...
Hello all, I am 37, female and been diagnosed recently with PMBCL, this was a shock as I was fit and well and had no symptoms. I have no cancer in my family at all or in my friendship group so no one to talk to about it who would truely understand...
Hello, Thank you for reading in advance. My dad has just been diagnosed with NHL which seems to be in his clavicle area. For some weeks it seemed likely he had lung cancer but after a biopsy it has been found to be NHL although the sub type is yet...
