Hi All, I finished chemo in March and had a course of radiotherapy that finished in June. Over the last few months I've been suffering with very painful joints and muscles with electric shock type pain s in my arms. I also have locking fingers and now...
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hello after a long gap. All is well with me, in remission and doing well. However the same can't be said of the cat who has rampant fleas. Has been treated at vet and I have a strong flea spary but I'm wondering if it is safe for me to use in the house...
Hello. I had the first of six r-cvp chemo sessions 9 days ago. I've been told that my hair may fall out entirely, or just thin. What have others found? Also, when does it happen, and is it gradual or fast? Thanks.
Awaiting results of my follow up bloods. Had low dose radiotherapy early February for non gastric Malt. Still no B symptoms but a bit on edge nevertheless. Helps to share anxieties with our understanding community. Thanks.
I finished my chemotherapy in March. It was RChop. The last few months I've been suffering with joint and muscle pain. Also trigger finger where my fingers are 'locked'. The pain is all over and I'm quite weak at times. My consultant is sending me for...
It's been a nightmare. First diagnosis was 4 years ago when J was becoming very weak. A&E rushed him through for transfusion. 2 fairly good years followed on Rituximab. But he was then transferred to a different doctor who obsessed on platelets and ignored...
Has anyone had pressure from the tumors before? Its not really pain but just alot of pressure. What did you take for it if so? I get that all day and it drives me nuts. My dr doesnt really want me taking oxycodone because its an addictive med but I feel...
Hi, I'm currently having chemo for non hodgkins but when I've had my next two, I need to have an iv drip, with chemo, for 5 days. Has anyone else had this please. Thanks x
I finished my treatment last month, i had chemotherapy and radiotherapy. I've not been offered any support, no number to call, no option for counselling, no real understanding of how things are going to be for me going forward. I never had a named nurse...
