Post treatment limbo

Hi again Jane03, unfortunately this is rather normal now as the NHS system has no capacity or money to be able to do most of this. I was fortunate to have a named nurse but this was before covid became a thing.

Do check to see if you have any Local Macmillan Support drop in centres in your area, do also check for a local Maggie's Centre as these folks are amazing.

Lymphoma Action run regular Lymphoma Online Support Groups for patients...... I highly recommend these groups as there is nothing better than talking with other who have walked the journey.

You may find it helpful to make a cuppa and have a look at this great paper After Treatment Finishes - Then What? by Dr Peter Harvey as it highlights the post treatment milestones.

As always the group are here to help as well ((hugs))

Hiya Jane03 I am post chemo and still going through a 2 year maintenance programme of rituxamab every 8 weeks, which is coming to a close. Since I'm responding well to treatment, I'm not a priority and to be fair, I totally understand that. BUT... there are a lot of post-treatment issues (that aren't as serious as say dealing with not being able to eat or put on weight like I had with chemo, but are still important and disorienting to me).

I have found a Cancer Coach. She's lovely. She's not a therapist and this isn't therapy. She works with me on diet, nutrition, lifestyle, exercise, mindset and all the things I can control, which helps me feel SO MUCH better. She's certified nutrition expert, too, so I trust her knowledge. Plus any questions I have, she does thorough research and will only give proven science-based answers.

She also helps me formulate my questions to my team. Which helps me communicate my needs better in a language that doctors and nurses understand.

Best of luck!