Hi NHL family, Hope you are all doing good? I was diagnosed a few months ago and was prescribe Bendamustine and Rituximab . Bendamustine - okay not great but coping Rituximab - woohoo - not great - have severe reactions which involved face, hands...
I was diagnosed with NHL ( Nodal Marginal Zone B-cell Lymphoma or Lymphoplasmacytic lymphoma) i n July last year. I’ve had 5 rounds of chemotherapy and now I’m having Rituximab maintenance every 8 weeks for a total of 2 years. Is anyone else having Rituximab...
Hi all, I'm new here. My name is Maddie. I'm a 36 year old woman and I finished my last chemo treatment for Primary Mediastinal NHL in February this year. Did 4 weeks of radiation and waited a month more to have a PET scan. The scan shows that my ovaries...
About the publications from Lymphoma Action. A few months ago I asked for several information sheets and a couple of booklets. Took me all this time to finish reading everything, and I am full of praise and admiration. The information is phrased in a...
My 48-year-old husband was diagnosed with follicular non-Hodgkin’s lymphoma about 16 months ago after what we thought was a lipoma was removed from his upper right arm when the pathology report came back it came back as a lymphoma he was immediately sent...
Hi. I was diagnosed with the above in November, following an abnormal X-ray in September. The size was 8cm. I had two low dose radiotherapy’s late Jan. And an appointment wiTh my haematologist on Wednesday. Due either to, brain fog or masks, I didn...
Hello I have been recently diagnosed with Waldenstoms Macroglobulineamia and i have been offered the choice of standard treatment (DRC) or to be part of a trial where I may be treated with DRC or RI Has anyone got any experiences of the trial or...
So mum was at ucl today, we still do not have a diagnosis . It's definitely t cell , but they don't know which. The pathologist is scratching his head . They've said they hope to know by next Thursday. In the meantime monday she has a lumbar puncture...
My mum was diagnosed with AITL about 3 years before she passed ( just before xmas) and also developed AML in the last few months. The grief is awful and I'm also safe in the knowledge that I'm likely to develop AITL too. I don't really know what I'm...
So my mum started her lymphoma journey in January . Although we think symptoms may have started the February of 2021. We found out 3 weeks ago she has lymphoma and yesterday found out it was either one of two. They are reanalysising her biopsy to be...
