AITL

Morning  AITL , I'm sorry to hear about your mum's passing , my  mum also passed away a month after I got out of hospital , You have any questions I'm sure the group can help you or point you where you should be going , I'm sorry I can't help you but I just wanted to reach out to you , we're all in this together , so someone/somewhere you'll get your answers , I was diagnosed with NHL , aggressive diffused B cell , which turned out to be Burkitt's lymphoma , I was told don't ask your gp as they don't have the answers we're looking for , if you're worried why don't you ask your mums named named nurse or 1 of their team , Xxxxx

Hi AITL , T cell lymphoma , there's the Mike The Highlander on here that could possibly help you  , but if you need to talk , let off steam you've came the right place Xxx

Hi AITL21 and welcome to this corner of the Community. I am so sorry to hear about your mum and I can fully understand your fear about the possibility of you facing AITL in the future, it is only natural as with some cancers like Breast Cancer this is very possible.

This information is taken directly from the Lymphoma Action website

Lymphoma is not passed on from parent to child (inherited).

Most people who have a close family member with lymphoma or another blood cancer do not develop lymphoma themselves.

However, your risk of developing lymphoma is slightly higher if you have a close relative (parent, brother or sister, or child) who has had lymphoma or another type of blood cancer. This might be due to lots of small inherited genetic changes that all increase your risk of lymphoma slightly.

But as Lymphoma is the 5th most common cancer in the UK there is always a chance that more than one family member could develop a type of Lymphoma but this is the same for many cancers.

I was diagnosed way back in 1999 with my type of T-Cell Lymphoma and I have two adult daughters and I am confidant that my girls will be fine with regards to developing my type of Lymphoma.

You do need to talk with your GP to unpack this so that your mind can be put at ease.

Lymphoma Action have a helpline on 0808 808 5555 where Sharon or Nic will be on hand to give you some support - open every week day from 10 till 3.

I lost my mum a year past November (not to cancer) so it takes time to process this but it helps to talk so why not join our Bereaved family and friends group as this is a safe place to get support. 

Talking to people face to face can be very helpful but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing and provide support for all the family.

Always around to chat ((hugs))