Hi all,
I'm new here. My name is Maddie. I'm a 36 year old woman and I finished my last chemo treatment for Primary Mediastinal NHL in February this year. Did 4 weeks of radiation and waited a month more to have a PET scan. The scan shows that my ovaries are enlarged and a further pelvic ultrasound confirmed this finding. The report also outlines increased vascularity and that the ovaries are solid. Has this happened to any women in this group? I'm worried not that the symptoms I dismissd as 'chemically induced menopause' were signs and symptoms that another lymphoma had grown elsewhere (night sweats, hot flashes, some itching). I questionned if I even mentionned this to any of my health care team, and I did. They too believed my symptoms to be menopause related. So I took to exercising again to offset the hot flashes and they all but disappeared 2 weeks ago, right around the time I started to have mild period-like cramping. I thought my period was coming back. I had it all throughout chemo, save the last cycle. I was to get my period the same day of my last round of chemo, but it never arrived. While my oncologist said that he doesn't believe this to be another lymphoma, it could be nothing, it could be something else so they need to do further investigation. Any ladies out there experience this? Thanks.
Hi MissMC and welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups.
I was diagnosed back in 1999 with a rare, incurable type of NHL Stage 4a so although my Lymphoma ‘type’ is different I understand the challenges of the journey very well.
I have been helping out on here for over 5 years and I am not sure if I have actually remember seeing anyone with your presentation but let’s see who is looking and look for anyone with the same experiences to get back to you.
Maddie (like your name - sane as my youngest granddaughter)
I will always highlight the Lymphoma Action website. Lymphoma Action is a small but very active UK Lymphoma Specific Charity who have lots of good reliable information, videos, webinars…. and a great support line.
They run regular Regional Lymphoma Online Support Groups where you can connect with others and a great Lymphoma Action Buddy Service where people can be linked up with someone who has walked the same treatment journey.
