Nhl fungoids mycosis

Being somewhat stoic by nature, I have a high tolerance for pain, so in that regard I was blessed throughout. STILL did not make it easy on a daily basis. But, I tried to keep focus on the purpose of life and those I loved. That alone made it easier. As well, what we believe can be an imense help. Being "olde-fashioned" I practice a 2,000 year old faith which personally sustained me through all.

I believe that maintaining a focus outside of the self - as much as possible - eases the strain. I have found that considering others who are for worse off than myself tends to place all in perspective. 

Hi Mike,  you were right, Maggies was the right place to go. We both finally let our emotions out. They listened. They gave us coffee and a hug.

.You were also right about the radio therapy. I am sure on the way to recovering now

Hi Mike and good to hear you both had a ‘positive’ experience with Maggie’s and the Radiotherapy.

You have to look at MF being a chronic health condition that you may need treatment for from time to time….. Sir Murray Walker (F1 fame)  lived with MF for a good part of his life and only ever had a small amount of treatment and went on to live rather happily until his mid 90s.

I too am lucky to have a wonderful caring family around me. Thank you for your advise. I will  beat this cancer. I will hopefully see a dermotogist and then a haematologist soon, they should be able to give me the answers to the many questions I  have

Of note, the American actor "Mr. T" has Cutaneous T-Cell Lymphoma and is a long-term survivor.