Hello

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Hi folks, I was diagnosed with low grade NHL in ln late October. For some time I had been experiencing breathlessness with odd dizzy spells and eventually went to see my GP. I think it's fair to say we both suspected lung problems as I was a smoker for around 40 years although I stopped 2 years ago. The doc took blood samples and made an x-ray appointment, I was surprised to get a phone call from him that evening telling me I was severely anemic.. He started me on iron tablets and folic acid and asked me to come back in a week. When I went back he took more blood samples, that evening I got a phone call from him again and told my haemoglobin count had got lower and he wanted me to go into hospital straight away that night. Was in for 5 days and confirmed NHL, incurable but treatable plus I was given 4 units of blood and told I would need 6 courses of chemo. Had the first lot 4 weeks later and was fine for 2 weeks then started to feel terrible, to cut a long story short it turned out to be my haemoglobin again leading to another week in hospital and another 7 units of blood.. Got my second dose of chemo early January and weekly appointments for blood tests. Blood readings have stayed ok so far and, all going well I have bloods tomorrow plus COVID19 vaccination tomorrow then chemo Tuesday and Wednesday next week. Having read a few threads in this forum I found encouragement to join up so hello all.

  • Had my 4th course of chemo on Tuesday and Wednesday this past week. The consultant talked me through what the CT scan showed when I met him on Tuesday morning, very positive, a lot of my lymph nodes are clear now and others reduced, he wrote down 'responding well to chemo' I'm well pleased and that's me two thirds of the way through the planned treatment, 2 courses to go, with luck.

  • Very good news indeed and let’s look for this to continue Thumbsup

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • A long overdue update folks, had my last 2 scheduled courses of chemo and, after an MRI scan, was told I'm in remission. Planned course of two monthly maintenance rhituximab for 2 years was started. Unfortunately not long before I was due my second dose I caught bloody covid and was hospitalised. Diagnosis was Severe Covid Pneumonia with superimposed bacterial infection. I got home from hospital on Thursday afternoon after six and a half weeks in hospital, mostly in critical care. I'm convinced I would be dead if I hadn't had both vaccination injections, consultant agreed with me. Please, please anyone with any form of cancer diagnosis make sure you are vaccinated

  • Sorry to hear about you brush with Covid but good you are home and let’s look for a speedy recovery - totally agree about getting every jab available Thumbsup

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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    See my story