Hello

Hi Harbourmaster and welcome to our corner. Your story leading up to diagnosis is rather normal for so many people. I also was diagnosed with an incurable type low grade Skin NHL back in 1999 (hit my name to see my story) but I have now been in remission for over 5 years now, remission was not ‘possible’ in 1999..... oh how things have moved on.

What type of NHL have you?....... what treatment are you having?

Always around to help out.

Hi Mike, thanks for replying. They haven't actually told me exactly what type it is yet, they've taken bone cores and marrow samples twice and sent them to Glasgow but the first time I asked what type they hadn't received results back from Glasgow. I will ask my GP tomorrow if I remember and if not I'll ask the oncologist on Tuesday before I go for my chemo. The chemo I'm getting is Bendamustine and also Rituximab with a mobile pharmacy of pills too.

Very sorry to hear of this diagnosis, which certainly came a s a shock. And the difficulties with haeoglobin and hospitalisations only made it worse. Yet, the treatment you are receiving is the gold standard in treating B-Cell Lymphomas and I would expect that, despite the treatment, you should be turning a corner soon, if not already. From the nightmare it formerly was, the diagnosis is becoming increasingly livable. You may indeed have had the lymphoma for a considerable time before you felt the symptoms. Do let us know how you go. 

Hi Harbourmaster R&B is often used.... makes me think about a band

There are over 60 types of Lymphoma so it does take time to pinpoint the exact type but good that treatment has started...., and yes a mobile pharmacy is a good description.... at my ‘high’ point I was on over 40 pills a day

Are you in Scotland by any chance?

Thanks for the kind words, it certainly has been superb treatment from every person I've come into contact with in Dumfries & Galloway NHS

I deserve the idiot prize, asked my GP today what type it is and he told me it's follicular, told my daughter later and she said 'yes, said that on the letter the hospital gave you on Christmas Eve' I checked and it does, god knows how I missed that

Some times we can miss the obvious, 

Lovely area Dumfries & Galloway.

Neither do I remember much more than my doctor's name from my first consult. 

A wee update, had my third course of treatment on Tuesday and Wednesday this week. The consultant is pleased with my progress and said on Tuesday morning he would arrange a CT scan to compare to the one I got in November. Hospital phoned today with an appointment for tomorrow morning.

Good to hear that the system is ticking over and times are improving