Itching

FormerMember
FormerMember
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Is anyone else suffering from severe itching that has remained after the chemo treatment? Lower back/spine area, ankles and wrists particularly. Have tried cortisone creams and Reactine and other anti histamine tablets but nothing seems to work.

Dermatologist seems reluctant to prescribe anything due to ongoing maintenance chemo.

Would be grateful for any advice, suggestions.

  • As I had a Skin Lymphoma itching was part of my life for over 17 years.

    Some folks will have skin reactions to maintenance treatments and apart from what you can get from your team and a dermatologist there is not much else I can advise.

    What are your treatment team saying about it?

    Is it happening all the time or following your maintenance?

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • FormerMember
    FormerMember in reply to Thehighlander

    Mike,

    Thanks, I'll clarify that it is my wife that has NHL and that I am seeking support on her behalf.

    The treatment team suggested seeing a dermatologist and the dermatologist gave anti histamines and cortisone creams. Dermatologist seems nervous of the chemo drugs. We are trying to get a series of allergy tests but no luck yet, in case it is not related, but would be very surprised if it isn't.

    The lower back rash and ankle rashes seem angrier in appearance and more active at times, but we haven't identified specifically when this happens as it seems quite random in relation to the treatments and chemo maintenance.

    Phil

  • Hi Phil, I obviously can’t give you any answers as each situation is so different.

    Way back when I started my treatment journey I was advised to keep a daily diary recording everything.

    This was invaluable during my early years with my skin NHL as we were able to identify triggers that made my condition worse.

    A allergy/patch test would be worth getting as her treatment may have triggered some allergies. I actually know someone who developed gluten intolerance following treatment!!

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • FormerMember
    FormerMember in reply to Thehighlander

    Mike,

    Thanks, yes that is what we are thinking might have happened.

    Regards

    Phil

  • FormerMember
    FormerMember in reply to FormerMember

    We were wondering if anyone else experienced this and how they dealt with it.

    It's currently driving her mad at times.

    Phil

  • Let’s see if anyone else with this experience comes along.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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