Brand new to this site.
Short history:- Ovarian Cancer in 2009 treated with surgery only; Colorectal Cancer treated with Surgery only in January 2020 and now Neuroendocrine Cancer in Right Lung and Bronchus treated with Surgery in April 2020. Margins apparently were too small and I am having PET scan tomorrow to find out where the remaining cancer may be hiding. I haven't been told stage or anything yet.
My questions (well the first few of many):-
Is there anyone else here who has been treated for NET in Lungs and it was successful?
Should I ask to be referred to a NET specialist?
I am really scared by all of this but I am trying to stay positive but it is so tiring. I am currently awaiting for consultation with Macmillan Psychology Dept.
TIA for any responses.
Hi Scottish Misty and a very warm welcome to the online community
I'm sorry to read how much you've been through over the last 10 years or so and that now you have a NET in your lungs.
As I'm not a member of this group I can't help with your question but I noticed that you hadn't had any replies yet. While you're waiting, if you type 'NET in lungs' into the search bar in this group you'll find quite a few previous posts which mention this. You could have a read through those and respond to any of the posters who you think might be able to help further.
I hope your PET scan went well and you'll have your results and treatment plan soon.
x
Hi Scottish Misty, I haven’t logged in for a while but just saw your message. I have atypical lung carcinoid/neuroendocrine cancer. I found it really helpful to be referred to a NET specialist centre, and if you haven’t yet already been referred, you might want to follow that up. They have a good focus upon the best treatment options and most have a nurse specialist too. I have also found Neuroendocrine Cancer UK particularly helpful https://www.neuroendocrinecancer.org.uk. They have lots of information and they also pointed me in the direction of a clinical trial that was suitable for me. I think we “lung primaries” are not so common, but I do hope that things have moved forward in a positive way for you.
best wishes, Deb
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007