Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia...
Jane is a haematology nurse with extensive experience in stem cell and bone marrow...
Hi all, especially anyone facing a hospital stay,
Please feel free to add to this list!
In hospital for a transplant you may not feel much like reading or concentrating a lot, so.....
Trashy tv, films on iPad or DVDs
Favourite music, comfy headphones
Favourite duvets/pillows, plus plenty of changes as daily laundry will be needed
Comfy clothes, nightwear and dressing gowns/onesies, slippers
Plenty of underwear changes
Favourite hand cream/lotions bearing in mind you might not want them afterwards because of association!
A few photos/posters to put up with blutack.
This is so helpful thank you xx
Anyone who thinks of anything else, please do add!
Just an extra, your unit will most likely have a ward kitchen, where they can microwave stuff, so tinned goods, snacks etc that you love, plus in-date micro meals/snacks, but ask your visitors to check dates and use themselves before the ward chuck them out ( as they will when they get near eat-by date)
Don't forget laptop and phone plus CHARGERS
Men take care of business
Ah, yes, thank you!
Check if there's free internet access or whether you need a dongle.
I've sent you a friend request, hope you don't mind, but there a few things I wanted to ask you about an allo transplant.
Quilted toilet roll and wet wipes.. If
You get an upset stomach you don't want to be using too much of the hospital toilet roll that's for sure!
I enjoyed boiled sweets as well.
Take a notepad with you as questions pop into your head at odd hours and also you think of things you would like to do once you recover. Helps if you get chemo head..
What is a Community Champion?
You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.
I completely agree on wet wipes or moist toilet roll. And - dare I say it - some teena lady briefs. It sounds awful but they saved my dignity on those few days when my tummy was really dodgy. And I didn't have to ask nurses for anything. Apparently a it's fairly common need that no one wants to talk about.
My tummy was upset most of the time so food wasn't an issue for me but the sweets suggestion is a good one.
Entertainment wise I took audio books for the days that I felt too tired to watch tele. And I took mindfulness colouring books and needlework to distract & keep my hands busy. I crocheted a shawl.
You'll probably have Hickman line so it's helpful if you have sleep/leisure wear that buttons or opens in the front. Not essential but allows easier access.
That's all I can think of that hasn't already been said.
Hope it helps. Dana
As Dana says if you do get bad with your stomach the hospital will have a supply of adult sized pampers.. Better safe than sorry lol!
Did anyone mention lip cream / moisturiser? My lips in the dry air of the room cracked continuously.
One other thing that was useful was an extension lead so I could plug in all my bits and bobs by the bed and have them all to hand.
Great ideas, folk, keep them coming!
Mikey, accepted, ask away via pm!
Paul: the lip cream idea is a winner!
That has made me laugh about the lip cream!! What a bunch of girls we all are lol.
Nappies and extension leads! Gotcha thanks! Haha .
Give me strength, am dreading it!
dana, I like the colouring books idea... I have been leaning towards the idea of those lately. I am finding the iPad and Internet too inane sometimes. X
Elena, we're trying to think of all eventualities! (Daughter was only in hospital 9 days for her auto, in isolation only 8 days, they threw her out a day after isolation finished! - yup, needed the bed) I know that was something of a record, but they really don't want you to stay in any longer than they can help.
Keeping active when you can helps loads, even just ensuring you get a daily shower!
Hi. As Moomy said it is good to be prepared. I did well and was out 10 days post transplant. I'm not saying it was easy or fun but I got to the other side.
I do have a tendency to plan. I probably over planned and definitely overpacked but it in my case I had no guarantees that people would be around to run errands or do laundry etc. Friends did their best but visits weren't always possible. Many had bugs and were banned. So I planned to get through transplant and manage when I got home without much help.
I came across a quote by Henry Ford that became my mantra during transplant "If you think you can or think you can't you're probably right." And I decided that I could and would get through it.
Today was day 295 and counting.
Wishing you the best and hope you're weathering the chemo cycle. Dana
Safe payments by:
We're here to provide physical, financial and emotional support. So whatever cancer throws your way, we're right there with you.
© Macmillan Cancer Support
© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man
(604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company
number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: