Hi All
I am not new to community but new to the chat. I was 57 when diagnosed a year ago undergone treatments and back to back stem cell transplants.
I am now in remission & I start my maintenance drug 3rd October.
It has been a very difficult time as my husband who is 64 has advanced prostate cancer which has spread to other parts of his body like me incurable but treatable.
We support each other our children & family have also supported us throughout treatment & continue to. Our outlook like many others has changed we want to spend time with each other family & good friends, enjoy going to the places we have spoken about & doing what we want to do.
my husband hasn’t worked due to impact of treatment & how the cancer is effecting his bones. I really don’t want to return to work I’ve never felt this way before I’ve always enjoyed my work in a care home I am partly scared due to infection. I also have neuropathy in my hands & feet hopefully will improve.
I know everyone’s journey is different I wish everyone the best on their journeys.
JSB4
Hi again JSB4 and good to read your update. I don't have Myeloma but another rare type of incurable Blood Cancer (CTCL) but I have had 2 Allo (donour) Stem Cell Transplants (SCT).... the first in June 2014 then the second in Oct 2015 so I am coming up to 8 years out from treatment.
Life can change dramatically once you have a cancer diagnosis and especially once you have been through treatments like SCT. My condition became rather more demanding back in mid 2011 so took early retirement from teaching to become a 'full time patient' in the NHS for a number of years..... not what I wanted from my retirement...... but we are now starting to enjoy things more as life has settled down more.
Infection and other issues post SCT is very real....... I have been 7 times back in hospital (40 days) with Chest Infections, Lung Fungal Infections, the RSV Virus, Pneumonia x2, Neutropenic Sepsis x2, A Fib and a heart attack........ but I am turning 68 in Nov and am still living a good life.
Navigating the post SCT life can be challenging for some, we do have this rambling thread in our dedicated Stem cell transplant support group called Life after a SCT - A Survivor's Guide where some folks have shared their bumps in the road.
Always around to chat ((hugs))
