Hello

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 Hi all nice to be meet you all. Im 6 years on from my initial Myeloma diagnosis. After a couple of different initial treatments i had a Stem cell transplant in April 2022. Im now stable as they say and at present medication/treatment free. Trying to live my best life despite my condition and losing the mother of my children to cervical cancer in December 2022 . I am now the single parent to a 15 year old daughter and  a 25 year old son.

When i was initially diagnosed i found strength and inspiration  in talking and sharing with the  other patients that i was meeting on visits to the Guys Cancer centre. I hope to give and receive support etc from being on this forum. I look forward to communication with you all. Heads up we are Warriors in the fight together. One love and more power to you all. Together we will overcome

  • Hi  and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about the journey you have been on and more so about the loss of your family member.

    I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a rare, incurable but treatable type of Non Hodgkin’s Lymphoma (Stage 4) so although my Blood Cancer ‘type’ is different I do appreciate the challenges of the journey rather well…. especially as I have had 2 Allo (donor) Stem Cell Transplants (June 2014 then Oct 2015)

    It’s great that you have come along to support others on their journey, you may also want to join and post on our dedicated Stem cell transplant support group as we have a number in the group come from a Myeloma background.

    It would also helpful to put some information into your profile as it means you don’t have to repeat your story all the time. You can see how this is done by using the link at the bottom of my post and you can also see my cancer story using the second link….. but as my journey was long my story is long.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Hi there, I start my stem cell harvest tomorrow at Freeman’s hospital in Newcastle, fingers crossed it will go well, great to have somebody on this Forum that wants to chat I will let you know how I get on!!! 

  • Yes by all means keep me posted

  • Hi Notgivingbup 

    Just wanted to wish you the best of luck tomorrow with your stem cell harvest .

    Can I ask how did you get on with the prep for the harvest? My harvest has been delayed until March now but I'm so glad I'm finally finished with 4 cycles of Dara VTD .On wards and upwards ! Let ne join how you get in .

    Cakie

  • Harvesting is pretty uneventful. The only thing negative that i experienced was a runny belly caused by the drug they gave me that stimulates stem cell production. Almost soiled my clothing on my way home had to run into a pub to use the toilet. 

  • Hiya Cakie

    the prep for the harvest was a doddle with the 4 days of injections at home that my daughter did for me, glad your 4 cycles are over!!! The harvest is nothing at all to be scared off the lady in the next bed finished in one day but unfortunately for me I didn’t produce enough cells so I had more injections and second day all was well. I’ve just woken up now feeling a bit achy but that’s it, I have my transplant day for January 31st now this I’m not looking forward to but hey ho let’s go for it!!! X

  • Hi Notgivingup, glad to hear that your harvest was successful, that's another step forward x

    Onwards and upwards from here for you with the transplant in sight now .

    Do you mind d me asking  , did you have an IV infusion of Cyclophspamide as part of the prep for Harvest  

    I've been told that I will have this .

    On another matter ,after your 4 cycles were you advised to remain careful with your immune system ?Enjoy your Sunday x 

    Cakie