Hello

Hi Bubbleycat and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about the journey you are on.

I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a rare, also incurable but treatable type of Non Hodgkin’s Lymphoma (Stage 4 in late 2013) so although my Blood Cancer ‘type’ is different I do appreciate the challenges of this journey rather well but not the specifics of you condition.

Let's look for some of the group members to pick up on your post. There actually have been a few new members join recently so why not click on the main ‘Myeloma Group’ title and this will bring up all the group posts. Have a look at them and as always you can hit reply to any post and see if the member is still using the community.

It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

We also have our Ask an Expert section but do allow a few working days for a reply.

For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332

You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and each centre do run monthly Heamatology Support Groups most are online at the moment….. the one I attend does have a few folks with Myeloma in it so worth checking.

Always around to help more or just to chat.

Thank you for replying all information is very much appreciated 

Hello Bubblycat

I have gone through my 4 cycles of treatment and am going on Wednesday to have my stem cell harvest, do you know what treatment you will be having ? Any questions I am happy to answer and help you xxx

Thank you no treatment at present I’m on the watch and wait so reviewed every 3 months unless I get any symptoms 

good luck with your stem cell transplant ️

Hi Bubbleycat I was diagnosed with smouldering myeloma back in 2019. So far, I’ve not needed any treatment but have my blood levels checked every two months.
It’s a lot to get your head around and I still get very anxious before each consultant appointment in case she thinks I need to start treatment. I want to put that off for as long as possible!
I’ve found practicing yoga has really helped me, both physically and emotionally.
If you want to talk further, please let me know

Thank you so much!! ️

Thank you ️