Hi Elton and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about the journey you are on.
I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a rare, incurable but treatable type of Non Hodgkin’s Lymphoma (Stage 4) so although my Blood Cancer ‘type’ is different I do appreciate the challenges of this journey rather well. From what I read on the various posts in the group bone pain is highlighted a lot.
Let's look for some of the group members to pick up on your post. There actually have been a few new members join recently so why not click on the main ‘Myeloma Group’ title and this will bring up all the group posts.
Have a look at them and as always you can hit reply to any post and see if the member is still using the community.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.
For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332
Always around to help more or just to chat.
Hi Elton
sorry that you have developed bone pain, I am new here too. Currently on treatment and awaiting STC I have bone pain I was diagnosed with myloma after an MRI showed a fracture in my spine so I have had radiotherapy for that 8 weeks ago it is a little better but they said it would take a while to improve I take morphine for pain relief. Some days are better than others, hopefully it will continue to get better. Hope you get your mri appointment quickly.
take care x
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