I am new here , hello all

FormerMember
FormerMember
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Hello Everyone, am new on this forum . 
I have Myeloma , bone marrow cancer which is a blood cancer .Have been having chemotherapy since early March. Just started a new regimen, now 3 weeks in . 
Have been really upbeat , positive etc but just dipped and struggling a bit mentally at the moment. Am sure it will pass,any suggestions on what to do going forward? 

  • Hi  and welcome to this corner of the Community although always sorry to see folks joining us. I am Mike  and I help out around our blood cancer groups.

    I just wanted to say high and let’s look for some of the group members to pick up on your post but always around to chat if you want.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Hi Mike / Highlander , thank you for your welcome and offer of a chat etc .  

  • Chatting through a Myeloma diagnosis is the best way to unpack what this looks like and how best to walk it.

    You can look through old discussions and reply to them if you feel it helps. Put up questions on this discussion, you can hit group members community names and see some of our stories.

    Lots of ways to engage with the group.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

    1. Well a good morning to you. My wife was diagnosed with multiple myeloma just over 12mths ago.

    those that remember me will remember it attacked her backbone,ribs etc etc causing them to deform almost in front of your eyes.

    well,shut down happened and I won’t bore you with all the distress of reactions to meds etc.

    But now the myeloma is undetectable in blood or marrow so as she is on the trials the next year begins of less tablets but monthly monitoring same as before but hey we are extending life and it’s a miracle to how she was.

    Macmillian on line/phone have been unbelievable and we wouldn’t have got through without them.

    Dont put asking for help off. 

  • FormerMember
    FormerMember in reply to Johnbemussed

    Hi John , good to hear the good news about your wife .Sounds an amazing improvement and positive life moving forward. Encouraging to hear . Have contacted MacMillan this week and they are arranging a telephone buddy and giving me information and help emotionally. Wish has done it sooner . So very kind and helpful. Good luck with everything